Abstracts of the 19th Asia-Pacific Prostate Cancer Conference 2018, 22 - 25 August 2018, Brisbane, Australia.

Abstract

Objective: Research suggests some men on active surveillance for low risk, localised prostate cancer, will opt for treatment before evidence of disease progression due to anxiety or uncertainty. This study aims to explore the experiences of men (and their partners) on active surveillance, to further understand the perceived benefits, challenges, and facilitators for adherence, in order to inform person‐centred support. Methods: Semi‐structured, qualitative interviews were conducted with participants (13 males currently or previously on active surveillance, 5 female partners) via telephone or face‐to‐face. Interviews were audiotaped, transcribed verbatim, and thematically analysed. Results: The majority of participants described active surveillance in a positive, nonchalant manner. However, some participants described feeling concerned, anxious, or worried before follow‐up appointments, often due to a fear of cancer progression. Despite this, most participants did not desire additional psychological support, as it had already been accessed or was considered unnecessary. Several factors appeared to facilitate their adherence and influence their experience, including their perception of cancer, the doctor‐patient relationship, and the coping strategies they used (e.g., seeking information online and preparing for the future). Conclusions: This study provides an insight into the facilitators, coping strategies, and views of men and partners who adhered to active surveillance (at least until disease progression). Most participants had adequate access to support and experienced few concerns, although fears were often heightened before appointments. The experiences, needs, and attitudes illustrated in this study may be used to develop effective person‐centred support for men on active surveillance at risk to leaving prematurely.