Abstract TP403: Caring for the Caregiver After Stroke

Abstract

Background: After diagnosis of a chronic progressive condition or emergent neurologic event, the focus is on the survivor and his/her adaptation to a ‘new normal’. Often these survivors or neurologic disease/injury require physical or emotional support and supervision from a caregiver. Research tells us that the act of caregiving is stressful, and often leads to physical and mental health problems for the caregiver1. Caregivers are often forced to adjust to a ‘new normal’ themselves, and verbalize feelings of loss associated with the relationship with the person they are caring for and indicate an inability to engage in tasks that they enjoy2. Studies also indicate that support often helps caregivers identify the positive attributes to caregiving, and that community recognition/support leads to positive coping behaviors3. Purpose: The purpose is to inform the audience of the novel Stroke Caregiver Support Group with respite care provided in Grand Rapids, MI. Methods: An analysis of feedback from stroke caregivers attending this support group was conducted. Within this analysis, meaningful support group topics and respite care services were described, with analysis of how these topics benefitted the caregiver and the adjustment to life caring for a stroke survivor. Results: Stroke caregivers appreciate a caregiver only support group as a venue to share difficult feelings with peers and promote self-reflection. All participants indicated a strong desire to continue to attend this support group and appreciate focus topics on finances and emotional adjustment after stroke. Conclusions: There are few caregiver-only support groups available for those caring for a loved one after a stroke. Although many diagnosis specific survivor support groups (stroke, TBI, Alzheimer’s, etc.) exist, few target the caregiver and offer a time for respite and support with a professional moderator. A care-giver only stroke support group has shown positive anecdotal value. Long-term study on any health-related benefits and qualitative impact is recommended.