Abstract NS4: Implementing an In-Patient Family Support Group in a Comprehensive Stroke Center

Abstract

Background: We identified that during the acute critical phase of stroke the families felt removed from the process. All focus is on stabilizing the patient while families are bystanders. Stroke creates a ripple effect; it doesn’t just happen to the patient it also happens to those around them. The purpose of initiating a Support Group was to provide an environment where family and friends are given a voice and support. Methods: The weekly Family and Friends Stroke Support Group was launched in January 2019 in the Family Center, a waiting room between the Neuro-critical Care and Neuro Intermediate Units. A flyer was posted in these Units, the Family Center, and included in education packets. After the inaugural session it was noted that there needed to be a process to increase attendance. Daily rounds were initiated to invite loved ones of current stroke patients to the support group. Discussions included: stroke education, community resources, and access to chaplain services. An open agenda offered a safe space for attendees to share their stories, thoughts, and questions. We measured the response to our intervention by reviewing Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS) scores. Results: Over seven months 122 family members and friends attended the Support Group, an average of 4.5 per session. The overall response by attendees was how they enjoyed the group sessions as depicted in this reoccurring statement: “I really needed this time to talk through my emotions with other people going through the same thing it’s so encouraging!” This initiative significantly improved the patient and family experience as reflected in the HCAHPS score domains. There was an improvement of 4.2% (on a 9-10/10 scale) in the Overall Global Rating of the Hospital domain and of 8.5% (with Strongly Agreed selected) in the Good Understanding and Management of Health domain. Conclusion: A hospital based in-patient Family Support Group is beneficial to the family experience in an acute stroke setting as evidenced by improved HCAHPS scores. Daily rounds and participation of staff ensure the Support Group is well attended. Overall response of attendees has been positive: “This support group has been great I didn't even know I needed to talk until I did, thank you so much!”