Abstract
Hereditary hemorrhagic telangiectasia (HHT) is a hereditary disease characterized by arteriovenous malformations found throughout the body’s mucosal membranes, skin, and visceral organs. Interventional radiology is intimately involved in HHT patient care and treatment, especially for embolization of patients’ pulmonary arteriovenous malformations (PAVMs). Studies evaluating health related quality of life (HRQOL) in patients with HHT are rapidly expanding but it is unclear what gaps in the literature remain.
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