Abstract
Abstract Patient reported outcome (PRO) measures can be collected in clinical trials or clinical care through questionnaires. PROs allow a direct measure of how a patient is feeling and functioning, directly from the patient without interpretation by another person or clinician. PROs give patients a voice. Although there are challenges to collecting PROs, these challenges can be overcome. When deciding which measures to collect there are some things to keep in mind. For example, if the questions are relevant and meaningful to what the patient is experiencing they will be more likely to fill them out, providing useful information. The questionnaires can also be given in multiple formats (electronic, paper, telephone) to accommodate the preferences of different patients. However, collecting PROs is not enough, the information collected needs to be used to inform future patients or inform patient care. Additional challenges and benefits of collecting PROs in breast cancer research and clinical care from the patient perspective will be discussed. Citation Format: Patty Spears. Patient Advocate Perspective [abstract]. In: Proceedings of the 2022 San Antonio Breast Cancer Symposium; 2022 Dec 6-10; San Antonio, TX. Philadelphia (PA): AACR; Cancer Res 2023;83(5 Suppl):Abstract nr ED1-4.
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