Abstract C15: Using grounded theory to develop a model of prostate cancer care and survivorship for black men: The Florida CaPCaS study

Abstract

Abstract The purpose of this study is to explore the experience of screening, diagnosis, treatment and survivorship of black men with prostate cancer using qualitative ground theory methodology. A sample of black men diagnosed with prostate cancer in 2010 was recruited via telephone screening from the Florida Department of Health cancer registry. The individuals recruited were purposively sampled for variation in country of origin (African, Caribbean, and US born) and other demographics. An open-ended interview guide about their prostate cancer experience, developed by our Community Advisory Board and revised by the scientific team, was used to conduct in-depth, face-to-face interviews of 2-3 hours in length. The interviews were scheduled at the convenience of the participant and conducted by a black male Community Health Worker in a private location in the community chosen by the participant. These steps were taken to assure maximum comfort for the participants to share their experiences fully. To date 14 interviews have been completed, with the goal of 60 interviews completed by the end of September, 2015. Data analysis consists of line-by-line coding of interview transcripts for themes that emerge from the interviews, followed by in-depth coding of constructs to be included in a grounded theory model of the prostate cancer experience for black men. Preliminary findings indicate emerging themes of trust of the health care providers, the impact of health literacy, views of active surveillance and watchful waiting, the importance of family support, and decisional regrets. Understanding the prostate cancer experience from the perspective of black prostate cancers survivors will help us to reduce the impact of the disease in this population. Citation Format: Mary Ellen Young, Folakemi T. Odedina, Christopher Williams, Deidre Pereira, Getachew Dagne, Eva Egensteiner, Lauren Gilbert, Kenneth Stokes, Christopher Hill, Esther Piervil. Using grounded theory to develop a model of prostate cancer care and survivorship for black men: The Florida CaPCaS study. [abstract]. In: Proceedings of the Eighth AACR Conference on The Science of Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; Nov 13-16, 2015; Atlanta, GA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2016;25(3 Suppl):Abstract nr C15.