Abstract

Background: Self-reported outcomes in stroke survivors remain understudied. Mounting evidence indicate that the burden of stroke is disproportionately high in underrepresented groups. We investigated differences in self-perceived health status in stroke survivors across broadly defined underrepresented minorities. Methods: We analyzed data from stroke survivors enrolled in All of Us. Ischemic and hemorrhagic stroke were defined using validated ICD10 codes. Self-perceived health status was evaluated using 5 domains (quality of life, physical health, mental health, social activities and overall health), each with 5 answers (excellent, very good, good, fair and poor). Each domain was dichotomized as favorable (excellent, very good or good) or unfavorable (fair/poor). We used multivariate logistic regression to model the odds of favorable self-perceived health status in underrepresented groups defined by race/ethnicity, education, income and insurance type. Results: 6,977 stroke survivors were included (mean age 64, female sex 58%), including 1,623 (23.3%) Blacks, 856 (12.3%) Hispanics/Latinos, 654 (9.4%) with less than a high school degree, 2,679 (38.4%) with income <U$S 35k, 3,091 (44.3%) with Medicare/Medicaid and 13 (0.18%) uninsured. A number of underrepresented groups had significantly different self-perceived health status after stroke (Table): low income, limited education and Medicare/Medicaid insurance were associated with self-perceived unfavorable health status in all 5 domains (all results with 95%CI <1). Conclusion: Among stroke survivors, underrepresented groups defined by income, education and health insurance were more likely to perceive their health status as unfavorable. Evaluation of underrepresented groups defined by factors other than race/ethnicity was important to identify these differences. Further research should evaluate whether these differences correlate with objectively measured outcome measures.

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