A Tale of Two Adolescents: A New Role for Pediatric Palliative Care

Abstract

Introduction For adolescents and young adults (AYAs) with life-threatening, complex chronic diseases (CCD), advanced care planning (ACP) empowers them to define their goals of care and be involved in end-of-life (EOL) conversations, but requires meticulous communication and understanding of their developmental stage. As more AYAs with CCD survive into adulthood, transition of care becomes increasingly important; however, there is sparse literature on how to incorporate ACP and what role Pediatric Palliative Care (PPC) plays in the transition process. We present two case reports of AYA’s with CCD whose care became …