Abstract
Introduction:Patient and public involvement and engagement (PPIE) in research is an essential component of high-quality research. Patients and the public can identify which research topics are most relevant to them, contribute to study design, and interpretation and dissemination of findings. While inclusion of PPIE is widely adopted in medical research, awareness within the dental research community is more limited.Aim:To examine patient and public involvement and engagement in orthodontic research activity.Design:Identification and appraisal of use of PPIE in orthodontic research reporting and funding applications using a systematic approach.Methods:Three sources of information were examined: (1) research articles published between September 2018 and September 2019 in four major orthodontic journals. Articles were examined for reported PPIE; (2) common funding bodies for orthodontic research were assessed to establish whether PPIE was mandated (National Institute for Health Research, Medical Research Council, Wellcome Trust, Chief Scientist Office (Scotland), Health and Care Research Wales, British Orthodontic Society Foundation, Royal College of Surgeons and CLEFT); and (3) publication guidance for authors in these journals was examined to identify whether reporting of PPIE was included.Results:Of the 363 research articles, 2 (0.6%) mention patient/public involvement. None of the 363 research articles mention patient/public engagement. Of nine funding bodies, 2 (22%) request evidence of patient/public involvement as a condition of receiving funding with one (11%) expecting evidence of public engagement to be provided as a condition of receiving funding. None of the four major orthodontic journals include patient/public involvement and/or engagement in their guidance for authors.Conclusion:There is currently: (1) a notable lack of reporting of PPIE in orthodontic research; (2) variability in the requirements of funding bodies for researchers to include PPIE in funding applications and throughout the research process; and (3) no stipulation in journals’ instructions for authors.
Highlights
Patient and public involvement and engagement (PPIE) in research is an essential component of highquality research
Articles were examined for reported PPIE; (2) common funding bodies for orthodontic research were assessed to establish whether PPIE was mandated (National Institute for Health Research, Medical Research Council, Wellcome Trust, Chief Scientist Office (Scotland), Health and Care Research Wales, British Orthodontic Society Foundation, Royal College of Surgeons and CLEFT); and (3) publication guidance for authors in these journals was examined to identify whether reporting of PPIE was included
Patient and public involvement and engagement (PPIE) in research is an essential component of high-quality research; patients and the public can contribute in a number of ways (Table 1) to help identify which research topics are most relevant, to improve study design and delivery, and to identify effective methods for disseminating research to the public (Staley, 2009, 2015)
Summary
Patient and public involvement and engagement (PPIE) in research is an essential component of highquality research. Patients and the public can identify which research topics are most relevant to them, contribute to study design, and interpretation and dissemination of findings. Patient and public involvement and engagement (PPIE) in research is an essential component of high-quality research; patients and the public can contribute in a number of ways (Table 1) to help identify which research topics are most relevant, to improve study design and delivery, and to identify effective methods for disseminating research to the public (Staley, 2009, 2015). PPIE is important because healthcare research is designed to benefit patients and the public. They should have a say and be involved in research studies. The use of PPIE makes for higher-quality and more ethical research
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