Abstract
BackgroundTo describe how using a combined approach of community-based participatory research and intervention mapping principles could inform the development of a tailored complex intervention to improve management of asthma for South Asian (SA) children; Management and Interventions for Asthma (MIA) study.MethodsA qualitative study using interviews, focus groups, workshops, and modified intervention mapping procedures to develop an intervention planning framework in an urban community setting in Leicester, UK. The modified form of intervention mapping (IM) included: systematic evidence synthesis; community study; families and healthcare professionals study; and development of potential collaborative intervention strategies. Participants in the community study were 63 SA community members and 12 key informants; in-depth semi-structured interviews involved 30 SA families, 14 White British (WB) families and 37 Healthcare Professionals (HCPs) treating SA children living with asthma; prioritisation workshops involved 145 SA, 6 WB and 37 HCP participants; 30 participants in finalisation workshops.ResultsTwo key principles were utilised throughout the development of the intervention; community-based participatory research (CBPR) principles and intervention mapping (IM) procedures. The CBPR approach allowed close engagement with stakeholders and generated valuable knowledge to inform intervention development. It accounted for diverse perceptions and experiences with regard to asthma and recognised the priorities of patients and their families/caregivers for service improvement. The ‘ACT on Asthma’ programme was devised, comprising four arms of an intervention strategy: education and training, clinical support, advice centre and raising awareness, to be co-ordinated by a central team.ConclusionsThe modified IM principles utilised in this study were systematic and informed by theory. The combined IM and participatory approach could be considered when tailoring interventions for other clinical problems within diverse communities. The IM approach to intervention development was however resource intensive. Working in meaningful collaboration with minority communities requires specific resources and a culturally competent methodology.
Highlights
To describe how using a combined approach of community-based participatory research and intervention mapping principles could inform the development of a tailored complex intervention to improve management of asthma for South Asian (SA) children; Management and Interventions for Asthma (MIA) study
Two key principles were utilised throughout the development of the intervention; community-based participatory research (CBPR) principles and intervention mapping (IM) procedures
Phase 1 – systematic evidence synthesis Phase 1 of the IM process facilitated the formation of collaborative partnerships with community members, key informants and stakeholders
Summary
To describe how using a combined approach of community-based participatory research and intervention mapping principles could inform the development of a tailored complex intervention to improve management of asthma for South Asian (SA) children; Management and Interventions for Asthma (MIA) study. Asthma is a heterogeneous disease, usually characterised by chronic airway inflammation; the symptoms include one or more respiratory symptoms such as wheeze, shortness of breath, chest tightness and cough [6]. It is a global health problem affecting all age groups; it is more prevalent in childhood. Existing guidelines, such as the Global Initiative for Asthma (GIA) guidelines, state that a successful management plan of asthma should include symptom controls to minimise future risk of asthma-related mortality, exacerbations, persistent airflow limitation and side-effects of treatment [6]. The British Thoracic Society/Scottish Intercollegiate Guidelines Network (BTS/SIGN) 2019 guidelines provide a diagnostic summary of clinical assessment and objective testing for asthma, including the positive test thresholds and algorithmic framework for objective tests for adults, young people and children (aged 5 and over) [7]
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