A spectrum of hidden morbidities among spousal caregivers for patients with cancer, and differences between the genders: A review of the literature

Abstract

ObjectiveTo explore the spectrum of hidden morbidities and gender differences in the spousal caregiving experience with regard to cancer patients across the cancer trajectory, and to discuss directions for future research and the implications for interventions to improve the caregiving experience. MethodsA systematic search was conducted to identity articles published in English or Chinese from January 2000 to July 2012. Studies were located using an electronic search, a manual search, and an author search. ResultsA total of 19 articles were identified and included in this review. This review of the literature revealed that female spousal caregivers, in general, experienced more mental morbidity (higher levels of distress, depression, and anxiety, lower levels of mental health), physical morbidity (lower physical health scores, poorer physical functioning, and loss of physical strength), and social morbidity (lower marital satisfaction and less social support) than male spousal caregivers. ConclusionsThis review of the literature revealed that spousal caregivers, particularly female spousal caregivers for cancer patients, are at a high risk of falling victim to a wide spectrum of hidden morbidities due to their caregiving experience. The cultural influences on the couples and their patterns of communication that influence the caregiving experience for cancer patients should be further explored. A tailored-made intervention for spousal caregivers, both males and females, in the context of cancer care should be developed to cater to the needs of this population, which suffers from a spectrum of hidden morbidities.