A sociological analysis of chronic fatigue syndrome and the impact on family support structures

Abstract

Discusses chronic fatigue syndrome (CFS), which is a “contested disease”, that is, it is not recognized by the medical profession as a legitimate illness and, consequently, people suffering from the illness are not eligible for support/aid. Explores what this non‐recognition means and the impact it has on both the sufferers and their families. Refers to repetitive strain injury and Alzheimer’s disease – neither of which were recognized by medical professionals until recent times – as examples of illnesses that have gained medical legitimacy. Reports that sufferers of CFS, who did not receive an adequate medical diagnosis, were under pressure to become active again, whereas sufferers who received a diagnosis of persistent fatigue gained a lot more support from family and friends. Investigates also the strains involved in coping with a family member with an illness such as Alzheimer’s disease or CFS – as ever economic resources figure prominently. Raises the issue of management of illness in modern society. Recommends that, as health care is pushed ever more onto families and the community, so they should be the recipients of financial support.