Abstract

We decided to develop a short-form of the CHC-SUN/YHC-SUN, a questionnaire aiming at assessing health care satisfaction of children and adolescents with chronic health conditions. Data analysis was based on samples from three different studies. Item selection involved statistical analysis and expert consensus. For independent validation purposes, we calculated descriptive statistics on single-item and composite-scale levels and applied classic test theory, confirmatory factor analyses, and correlation analysis to investigate the psychometric properties of the final short-form by different types of reliability and validity. Internal consistency (Cronbach’s Alpha) reached values of a = 0.89 (self-report) and a = 0.92 (parents report), split-half reliability values reached 0.85 (self-report) and 0.91 (parents report). Confirmatory factor analysis indicated no sufficient fit for the single factor solution, whereas the solution with three factors and one higher order factor indicated the best overall fit amongst three competing models. Validity of the short-form measure can be assumed, e.g., as indicated by its association with a single-item measure on general health care satisfaction. The short-form measures of the CHC-SUN for parents (CHC-SUN-SF) and the YHC-SUN self-report version for adolescents (YHC-SUN-SF) feature excellent psychometric performances, provide economical assessments, and are easy-to-administer questionnaires. They should be used whenever brief measures are needed for economic reasons.

Highlights

  • Published: 20 November 2021Throughout their development, children and adolescents with chronic conditions face continuous challenges with respect to the impact of their conditions on various domains of their daily life

  • Identifying special needs of children and adolescents with chronic health conditions is of great importance, as the health status and well-being of young patients has an impact on both childhood and adolescent development [2] as well as the quality of life of the entire family [3,4]

  • We aimed to investigate the psychometric properties of a newly developed short-form of the CHC-/YHC-SUN measure (CHC-/YHC-SUN-SF), assessing satisfaction with health care in children and adolescents with chronic conditions

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Summary

Introduction

Published: 20 November 2021Throughout their development, children and adolescents with chronic conditions face continuous challenges with respect to the impact of their conditions on various domains of their daily life. Developing reliable and valid instruments for the assessment of patient-reported outcomes or experiences such as quality of life could make a significant contribution to any activity directed to improving their well-being [5,6]. Incorporating such patient-reported outcome or experience measures in pediatric care would support those under treatment and their families—and their respective health care professionals [6]. It would enable them to gather more information about the treatment

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