Abstract

Motor neurone disease (MND) results in disabilities that affect most activities in daily life. Patients with MND require care and support with these activities at some stage. Care for people with disabilities in the UK is usually provided informally by family members, friends and significant others. Health and social care services also provide care for people in their homes. However, there is a paucity of evidence on how well health and social care professionals who are not MND specialists are prepared.This study explored how generalist health and social care professionals perceived their preparedness to care for patients with MND at home in palliative and end of life care. It found that practitioners needed formal training and that support from the multidisciplinary team was valued. Practitioners need to be updated about how to care for patients with MND.

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