A qualitative study investigating the experiences of young adults caring for a sibling with disability within immigrant families in the UK: “Challenges are just the constant”

Abstract

ABSTRACT Background Despite a growing body of literature investigating the impact of disabilities on family relationships, the experiences of ethnic minorities remain underexplored. Method Semi-structured online interviews were conducted with eight young people (aged 18-28 years) with disabled sibling(s) within an immigrant family to understand how this affects their wellbeing and relationships, identify sources of support and strain, and explore the significance of balancing different cultural expectations. We used reflexive thematic analysis to analyse the transcribed data. Results Analysis identified three themes: constant challenges, negative consequences on self and relationships, and coping strategies to overcome difficulties. Despite maintaining positive relationships with their siblings, challenges took a serious toll on young people’s psychological wellbeing and relationships. Participants used various coping strategies but desired culturally appropriate extra-familial support. Conclusions This study has highlighted the urgent requirement for policy makers to investigate how to better support young carers from diverse backgrounds.