A qualitative exploration of preventive dental advice for parents of children with congenital heart disease

Abstract

Background/Aims Children with congenital heart disease are at an increased risk of developing oral disease, which can negatively impact their general health and increase the risk of infective endocarditis. This study explored the preventive oral health advice given to parents of children with congenital heart disease and any barriers that exist to the implementation of this advice. Methods Four semi-structured interviews were conducted with parents of children with congenital heart disease, which followed a topic guide that explored personal experiences of oral healthcare provision and the advice received. Interviews were audio recorded and transcribed verbatim. Thematic analysis was undertaken by one researcher, with themes reviewed by a second. Results Improving awareness of oral health was highlighted as being important to participants. The prioritisation of the child's heart condition was also discussed, and participants felt that there were opportunities to develop the multidisciplinary collaboration between dental and cardiac teams. The consistency of messages could also be enhanced, as health advice sometimes contradicted oral health guidance, which could unintentionally increase the child's risk of tooth decay. Conclusions Enhancing collaboration between the various disciplines involved in the care of children with congenital heart disease is needed to ensure that appropriate advice and support is given to parents regarding oral health.