A proposal for a comprehensive protocol to develop and provide user-tailored assistive technology

Abstract

BACKGROUND: Various models, frameworks, and systems have been established to support persons with disabilities in accessing assistive technology (AT). This paper highlights the commonalities and complementary aspects of these resources for the optimal selection of the most appropriate AT for a particular user. The selection process considers the user characteristics, abilities, needs, and environment. However, it does not provide a specific methodology for tailoring this technology to individual users. OBJECTIVE: This study reports on the experience of an interdisciplinary team formed in 2001 to develop user-tailored AT. The team established a systematic methodology, detailed as a step-by-step protocol. METHODS: A survey was conducted to validate the protocol’s effectiveness and assess the impact of user-tailored AT. Participants included users and stakeholders. Quantitative data were requested and complemented with qualitative information. RESULTS: Eighty-one participants were involved, with 92.6% reliant on augmentative and alternative communication (AAC) systems. A user-tailored AT was developed for this cohort, with a sustained usage rate of 56.4%. Quantitative analysis revealed a 40% reduction in reported difficulties, and Individually Prioritized Problem Assessment (IPPA) scores demonstrated a corresponding 40% improvement in overall effectiveness. The qualitative data corroborated these findings, highlighting positive user feedback and underlining the significance of family support and interdisciplinary collaboration. CONCLUSIONS: The proposed methodology offers a step-by-step protocol that complements current models and frameworks and aims to guide individuals and teams that develop user-tailored AT for persons with disabilities. Additionaly, this study reflects the importance of applying user-tailored AT to improve the quality of life of persons with disabilities.