A pilot study to evaluate patient reported outcome measures of bladder cancer patients undergoing radical cystectomy at Guy’s and St Thomas’ NHS Foundation Trust.

Abstract

Event Abstract Back to Event A pilot study to evaluate patient reported outcome measures of bladder cancer patients undergoing radical cystectomy at Guy’s and St Thomas’ NHS Foundation Trust. Katie Hare1*, Kathryn Chatterton2, Charlotte L. Moss1, Beth Russell1, Sue Amery2 and Mieke Van Hemelrijck1 1 King's College London, United Kingdom 2 Guy's and St Thomas' NHS Foundation Trust, United Kingdom Objective This is a feasibility pilot to measure patient reported outcomes of bladder cancer patients undergoing radical cystectomy surgery. This study focuses onspecific areas of the FACT-BL-CYS such as emotional and sexual activity effects to better see the effect on patients. Methods Thirty-three patients undergoing radical cystectomy at Guy’s and St Thomas’ NHS Foundation Trust between 2015 and October 2018 were given the FACT-BL-CYS pre-operatively and at 1 year post-operatively. This data, along with demographic information, was analysed with a paired t test to look for statistically significant differences pre and post operatively. Results Overall, statistically significant differences were noted in 3 areas. GE4 ‘I feel nervous’ showed a different with p=0.02. We believe this to be due to scan anxiety before the 1 year follow up CT scan. ITU5 ‘I have to limit my sexual activity because of my condition reported a difference with p=0.01, similarly question B15 ‘I am able to have and maintain an erection’ had a statistically significant value of p=0.04. These findings are consistent with other data showing sexual dysfunction follow radical cystectomy surgery. Conclusion The FACT-BL-CYS patient evaluation of HRQOL outcomes following radical cystectomy showed that there were significant differences in patient nervousness and their sexual activity following radical cystectomy treatment at GSTT. Looking to the future of this pilot we should expand the patient population and look at multiple time points to see the short- and long-term effects and educate patients on this. Keywords: Bladder cancer, Radical cystectomy, Quality of Life, Patient related outcome measures (PROMs), FACT-BL-CYS Conference: Bladder Cancer Translational Research Meeting, London, United Kingdom, 29 Mar - 29 Mar, 2019. Presentation Type: Poster Topic: Elimination of uncertainty during surveillance following radical therapy Citation: Hare K, Chatterton K, Moss CL, Russell B, Amery S and Van Hemelrijck M (2019). A pilot study to evaluate patient reported outcome measures of bladder cancer patients undergoing radical cystectomy at Guy’s and St Thomas’ NHS Foundation Trust.. Front. Oncol. Conference Abstract: Bladder Cancer Translational Research Meeting. doi: 10.3389/conf.fonc.2019.01.00013 Copyright: The abstracts in this collection have not been subject to any Frontiers peer review or checks, and are not endorsed by Frontiers. They are made available through the Frontiers publishing platform as a service to conference organizers and presenters. The copyright in the individual abstracts is owned by the author of each abstract or his/her employer unless otherwise stated. Each abstract, as well as the collection of abstracts, are published under a Creative Commons CC-BY 4.0 (attribution) licence (https://creativecommons.org/licenses/by/4.0/) and may thus be reproduced, translated, adapted and be the subject of derivative works provided the authors and Frontiers are attributed. For Frontiers’ terms and conditions please see https://www.frontiersin.org/legal/terms-and-conditions. Received: 28 Feb 2019; Published Online: 27 Sep 2019. * Correspondence: Miss. Katie Hare, King's College London, London, United Kingdom, katie.hare@kcl.ac.uk Login Required This action requires you to be registered with Frontiers and logged in. To register or login click here. Abstract Info Abstract The Authors in Frontiers Katie Hare Kathryn Chatterton Charlotte L Moss Beth Russell Sue Amery Mieke Van Hemelrijck Google Katie Hare Kathryn Chatterton Charlotte L Moss Beth Russell Sue Amery Mieke Van Hemelrijck Google Scholar Katie Hare Kathryn Chatterton Charlotte L Moss Beth Russell Sue Amery Mieke Van Hemelrijck PubMed Katie Hare Kathryn Chatterton Charlotte L Moss Beth Russell Sue Amery Mieke Van Hemelrijck Related Article in Frontiers Google Scholar PubMed Abstract Close Back to top Javascript is disabled. Please enable Javascript in your browser settings in order to see all the content on this page.