A neuropsychological rehabilitation program for mucopolysaccharidosis based on the eco-epidemiological and community model of the World Health Organization

Abstract

The Psychology Program of the Corporación Universitaria Minuto de Dios, UNIMINUTO University (Main location), in agreement with the Colombian Association of Patients with Lysosomal Deposit Diseases (ACOPEL) in Spanish, develops neuropsychological research and intervention activities that contribute to overcoming the barriers that limit the access to prevention, care and health services for patients with Mucopolysaccharidosis since 2016. The answer to address this public health problem is based not only on assessment and neuropsychological diagnosis (n = 18 children, n = 3 adults), cognitive stimulation (n = 9 children) has been used in cognitive functions such as attention and memory, and currently neuropsychological rehabilitation (n = 2 children) taking into account the eco-epidemiological model in public health and the rehabilitation model based in the community of the World Health Organization (WHO), characterized by the overcoming of the traditional approach health-disease. In coherence with these models, the three phases of the research and two case studies are presented with a neuro-rehabilitation model of a biopsychosocial nature (systemic psychological intervention, interview in the family context and focus groups in the academic context). In conclusion, this line of research and intradisciplinary work in neurorehabilitation, is a new challenge in this Colombian population, which has allowed the improvement of the cognitive functioning of the participants, greater functionality in activities of daily life with their primary caregivers/family and inclusive education.