Abstract

The issues that confront families when a parent experiences mental illness are complex. This often means that multiple service systems must be engaged to meet families’ needs, including those related to intergenerational experiences of mental health and illness. A multisystem approach to public mental health care is widely recommended as a form of preventative intervention to address the effects of mental illness and its social, psychological, and economic impact upon parents, children, and families. Globally, a multisystemic approach to care requires a change in the way systems are currently organized to support families, as well as the way systems are interacting with families, and with each other. This qualitative secondary analysis emerged from a primary study examining global systems change efforts to support families, including components of change that were common and considered successful in different countries. A narrative inquiry method was used to re-analyze the data by compiling the stories of change described by individuals from participant countries. The data were interrogated to ask questions about story content, and to identify who was telling the story and how they described important changes across different geographical and cultural contexts. The individual stories of 89 systems change experts from 16 countries were then compiled into a shared global narrative to demonstrate international progress that has occurred over time, toward multisystemic change to support families where parents experience mental illness. While the global narrative demonstrates considerable overlap between pathways toward change, it is also important to document individual stories, as change pertains differently in different contexts. The individual stories and the global narrative illustrate how countries begin a journey toward change at different time points and may have various outcomes in mind when they commence. Study findings raise questions about the extent to which systems change can be standardized across countries that have unique social, cultural, political, and economic features. This study provides several potential points of reference for countries considering, or currently undertaking systems change to support families where a parent has a mental illness. It also provides an important story about international efforts undertaken to improve outcomes for families.

Highlights

  • Mental illness represents a substantial proportion of the world’s health problems, with lifetime prevalence estimates between 18% and 36% [1], accounting for 13% of the global burden of illness [2]

  • The analysis reported in this article is a qualitative secondary analysis (QSA) of data produced in an international Delphi study examining the concept of systems change to support families where a parent has a mental illness

  • QSA is a study in its own right; to avoid confusion, researchers generally refer to the primary study, as a way of distinguishing between the previous work and that to be performed in the secondary analysis [24]

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Summary

Introduction

Mental illness represents a substantial proportion of the world’s health problems, with lifetime prevalence estimates between 18% and 36% [1], accounting for 13% of the global burden of illness [2]. Approximately 15–23% of children may live in families with a parent who has a mental illness [3,4,5]. The effects of parental mental illness are likely comprised of bidirectional interactions between risk and protective factors at the individual, relational, community, and societal levels [10], requiring multilevel social and collective action [11]. Families are affected by their environments, including a wide range of ecological factors [10], such as poverty, homelessness, interrupted education, incarceration, and political or environmental disadvantage [11]. These factors can have longstanding impacts on families across generations [12]

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