Abstract

BackgroundThe unpaid care provided by informal caregivers allows care recipients to live longer in their homes, which often results in fewer unnecessary long term care home (LTCH) admissions. Although the relationship between care recipient’s health characteristics and institutionalization is well known, the influence of caregiver distress and caregiving coresidence and relationship on this outcome is less clear. This study examines the association of care recipient care needs, caregiver distress and caregiving coresidence and relationship with care recipient long term care home admission.MethodsA total of 94,957 resident assessment instruments-home care (RAI-HC), completed between April 01st 2013 and April 01st, 2014 as part of a clinical practice by 14 Local Health Integration Networks (LHINs) in Ontario, Canada, were linked to LTCH admissions within 1 year after completion of the first RAI-HC assessment. Cox models were used to examine whether care recipient health care needs, caregiver distress and caregiving characteristics such as coresidence and relationship were associated with LTCH admission. Age, marital status and gender of the care recipient were included as covariates in the model.ResultsCare recipient health care needs and age were the strongest predictors of LTCH admission followed by caregiver distress and caregiving coresidence and relationship. Care recipient marital status was not significant in the survival model. Interestingly, care recipients who were cared for by a coresiding adult child caregiver were less likely to be admitted to a LTCH than care recipients cared for by a spouse caregiver coresiding or not with care recipient. Hazard rates (HR) of admission for care recipients cared for by caregivers coresiding and with other type of relationship with care recipient were not significantly different than HR of care recipients cared for by coresiding child caregivers.ConclusionsThese results emphasize the influence of caregiver distress in LTCH admission and highlight the impact of caregiving relationship and coresidence on this outcome. Policy and decision makers should consider these findings when developing and evaluating interventions aiming to avoid LTCH admissions. Moreover, caregiving coresidence and relationship should be explored in future studies with similar aims, as this information has been neglected in past research.

Highlights

  • The unpaid care provided by informal caregivers allows care recipients to live longer in their homes, which often results in fewer unnecessary long term care home (LTCH) admissions

  • The latter association could be due to the presence of care recipient care needs that may not be manageable in a home care setting regardless of the caregiver’s willingness to provide care, when an LTCH admission becomes the best option for providing appropriate care [6, 13, 14]

  • Context Home and community care (HCC) agencies funded by 14 Local Health Integration Networks (LHINs) in Ontario assess the care needs of individuals living at home

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Summary

Introduction

The unpaid care provided by informal caregivers allows care recipients to live longer in their homes, which often results in fewer unnecessary long term care home (LTCH) admissions. Care recipient health characteristics that demand extensive assistance or vigilance from a caregiver such as behavioral symptoms, activities of daily living (ADL) and cognitive impairment have been consistently associated with caregiver distress and institutionalization [9,10,11,12]. The latter association could be due to the presence of care recipient care needs that may not be manageable in a home care setting regardless of the caregiver’s willingness to provide care, when an LTCH admission becomes the best option for providing appropriate care [6, 13, 14]. It is paramount to untangle caregiver distress and care recipient health care needs in studies on predictors of LTCH admission by including these factors in multivariable models

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