Abstract

We propose a methodological framework to support the development of personalized courses that improve patients’ understanding of their condition and prescribed treatment. Inspired by Intelligent Tutoring Systems (ITSs), the framework uses an eLearning ontology to express domain and learner models and to create a course. We combine the ontology with a procedural reasoning approach and precompiled plans to operationalize a design across disease conditions. The resulting courses generated by the framework are personalized across four patient axes—condition and treatment, comprehension level, learning style based on the VARK (Visual, Aural, Read/write, Kinesthetic) presentation model, and the level of understanding of specific course content according to Bloom’s taxonomy. Customizing educational materials along these learning axes stimulates and sustains patients’ attention when learning about their conditions or treatment options. Our proposed framework creates a personalized course that prepares patients for their meetings with specialists and educates them about their prescribed treatment. We posit that the improvement in patients’ understanding of prescribed care will result in better outcomes and we validate that the constructs of our framework are appropriate for representing content and deriving personalized courses for two use cases: anticoagulation treatment of an atrial fibrillation patient and lower back pain management to treat a lumbar degenerative disc condition. We conduct a mostly qualitative study supported by a quantitative questionnaire to investigate the acceptability of the framework among the target patient population and medical practitioners.

Highlights

  • The adherence of patients to their prescribed therapy is a key factor in successful management of their disease

  • Because of the incorrect answer, Mario is presented with a different Q&A BUK (AF Q&A BUK #3) that is associated with the same concept, theme, and order of learning

  • We present a novel methodological framework for developing a personalized course to teach patients about their medical condition and associated treatment

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Summary

Introduction

The adherence of patients to their prescribed therapy is a key factor in successful management of their disease. An ontology is a specification of a conceptualization [17,18]. Educational materials provided to patients include information about conditions and treatments and aim to equip them with knowledge and skills required to self-manage their condition and make informed decisions about subsequent treatment and daily care [20]. Patient education materials are most commonly available as printed pamphlets or references to hospital and professional medical societies websites. This generic standardized information is available to all patients regardless of their comprehension level of their health care. A recent Cochrane review on the effectiveness of printed educational materials found they may have a small beneficial effect on professional practice outcomes, but that there is insufficient information to reliably estimate their effect on patient outcomes [21]

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