Abstract
BackgroundA health promotion intervention was developed for inflammatory arthritis patients, based on goal management. Elevated levels of depression and anxiety symptoms, which indicate maladjustment, are found in such patients. Other indicators of adaptation to chronic disease are positive affect, purpose in life and social participation. The new intervention focuses on to improving adaptation by increasing psychological and social well-being and decreasing symptoms of affective disorders. Content includes how patients can cope with activities and life goals that are threatened or have become impossible to attain due to arthritis. The four goal management strategies used are: goal maintenance, goal adjustment, goal disengagement and reengagement. Ability to use various goal management strategies, coping versatility and self-efficacy are hypothesized to mediate the intervention’s effect on primary and secondary outcomes. The primary outcome is depressive symptoms. Secondary outcomes are anxiety symptoms, positive affect, purpose in life, social participation, pain, fatigue and physical functioning. A cost-effectiveness analysis and stakeholders’ analysis are planned.Methods/designThe protocol-based psycho-educational program consists of six group-based meetings and homework assignments, led by a trained nurse. Participants are introduced to goal management strategies and learn to use these strategies to cope with threatened personal goals. Four general hospitals participate in a randomized controlled trial with one intervention group and a waiting list control condition.DiscussionThe purpose of this study is to evaluate the effectiveness of a goal management intervention. The study has a holistic focus as both the absence of psychological distress and presence of well-being are assessed. In the intervention, applicable goal management competencies are learned that assist people in their choice of behaviors to sustain and enhance their quality of life.Trial registrationNederlands Trial Register = NTR3606, registration date 11-09-2012.
Highlights
A health promotion intervention was developed for inflammatory arthritis patients, based on goal management
All chronic diseases present a similar set of challenges to the patients and their families including dealing with symptoms, disability, emotional impact, complex medical regimens, difficult lifestyle adjustments, and securing helpful medical care [4]
According to the International Classification of Functioning, Disability and Health (ICF), individuals with chronic and disabling conditions are fully capable of being healthy and experiencing a satisfying subjective quality of life [2,5]. Notwithstanding this perspective, psychological distress is common in persons with polyarthritis [6], indicating that adaptation to the disease is not necessarily natural
Summary
A health promotion intervention was developed for inflammatory arthritis patients, based on goal management. Other indicators of adaptation to chronic disease are positive affect, purpose in life and social participation. Secondary outcomes are anxiety symptoms, positive affect, purpose in life, social participation, pain, fatigue and physical functioning. According to the International Classification of Functioning, Disability and Health (ICF), individuals with chronic and disabling conditions are fully capable of being healthy and experiencing a satisfying subjective quality of life [2,5]. Notwithstanding this perspective, psychological distress is common in persons with polyarthritis [6], indicating that adaptation to the disease is not necessarily natural. Emotional well-being is found to predict long-term prognosis of physical illness; higher levels of emotional well-being tend to benefit recovery and survival rates [14]
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