Abstract

This study is aimed at developing a Rural Primary Health Care (PHC) Model for delivering comprehensive PHC for dementia in rural settings and addressing the gap in knowledge about disseminating and implementing evidence-based dementia care in a rural PHC context. Limited access to specialists and services in rural areas leads to increased responsibility for dementia diagnosis and management in PHC, yet a gap exists in evidence-based best practices for rural dementia care. Elements of the Rural PHC Model for Dementia were based on seven principles of effective PHC for dementia identified from published research and organized into three domains: team-based care, decision support, and specialist-to-provider support. Since 2013 the researchers have collaborated with a rural PHC team in a community of 1000 people in the Canadian province of Saskatchewan to operationalize these elements in ways that were feasible in the local context. The five-step approach included: building relationships; conducting a problem analysis/needs assessment; identifying core and adaptable elements of a decision support tool embedded in the model and resolving applicability issues; implementing and adapting the intervention with local stakeholders; and sustaining the model while incrementally scaling up. Developing and sustaining relationships at regional and PHC team levels was critical. A comprehensive needs assessment identified challenges related to all domains of the Rural PHC Model. An existing decision support tool for dementia diagnosis and management was adapted and embedded in the team's electronic medical record. Strategies for operationalizing other model elements included integrating team-based care co-ordination into the decision support tool and family-centered case conferences. Research team specialists provided educational sessions on topics identified by the PHC team. This paper provides an example of a community-based process for adapting evidence-based practice principles to a real-world setting.

Highlights

  • An estimated 47 million people worldwide are living with dementia [Alzheimer’s Disease International (ADI), 2015], a prevalence that is projected to double every 20 years

  • The aim of this paper is to describe the development, adaptation, and implementation phases of a Rural Primary Health Care (PHC) Model for Dementia designed to address the gap in dementia care best practices for PHC in rural settings

  • We developed relationships first between the rural dementia action research (RaDAR) team and stakeholders at the health region level, and with health care providers and staff at the PHC team level

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Summary

Introduction

An estimated 47 million people worldwide are living with dementia [Alzheimer’s Disease International (ADI), 2015], a prevalence that is projected to double every 20 years. Rural areas have a higher proportion of seniors compared to urban areas (Elliot, 2012) due to outmigration of younger and in-migration of older adults (Milbourne, 2012), and increasing dementia risk with age. There are numerous barriers to high-quality dementia care in rural areas including limited services and specialist access

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