Abstract
The lack of appropriate information has been associated with difficulties encountered by stroke survivors and their caregivers on the return to home phase. Their opinion about their genuine needs may help discharge planning and assist the rehabilitation process. This study aimed at understanding the experiences of these individuals and their caregivers. A review of narrative literature in the last 10 years, in the databases Lilacs, Scielo, Cochrane, Bireme and Medline, with their respective strategies was carried out. The selected articles identified: doubts about the disease, difficulties in daily life, family caregivers present adaptation inabilities and are unprepared for home care, positive and negative changes in family relationships, information and orientations in the hospital are inadequate and insufficient, and few studies focused on the role of the physiotherapist in this process. The analysis also recommends assistance and support programs for family caregivers at home, and indicates that the information can reduce their inabilities.
Highlights
The lack of appropriate information has been associated with difficulties encountered by stroke survivors
This study aimed at understanding the experiences of these individuals
few studies focused on the role of the physiotherapist
Summary
RESUMO A carência de informações adequadas tem sido associada às dificuldades encontradas pelas pessoas após o acidente vascular encefálico e seus cuidadores no retorno ao domicílio, cujas opiniões sobre suas reais necessidades podem auxiliar nas orientações quando da alta hospitalar, favorecendo o processo de reabilitação. Este estudo teve como objetivo identificar na literatura a experiência do paciente e de seus cuidadores no domicílio após a alta hospitalar bem como a atuação do fisioterapeuta neste contexto. Os artigos selecionados apontaram as seguintes situações: dúvidas sobre a doença; dificuldades no cotidiano; inabilidades e despreparo dos cuidadores familiares no domicilio; mudanças positivas e negativas nas relações familiares; informações e orientações na alta hospitalar insuficientes e frágeis e poucos estudos voltados para o papel do fisioterapeuta. A partir de 1996 o acidente vascular encefálico (AVE) vem se constituindo, na população brasileira, como a principal causa de internações hospitalares, mortalidade e deficiências.
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