Abstract
Mothers of children with severe functional disabilities often assume roles that exceed the normative activities of parenting in relation to the intensity, complexity, and temporal nature of the family caregiver experience. This phenomenologic inquiry explored the lived experience of caregiving among mothers caring for an adolescent or young adult with severe cerebral palsy. Data were collected through semi-structured interviews with 11 mothers and analyzed using van Manen's approach. Analyses revealed four interrelated essential themes related to managing an unexpected life, balancing caregiver demands, assuming advocacy roles, and facing an uncertain future. Findings suggest the need for improved supports and services to optimize family caregiving during this transitional period of family life.
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
