A descriptive profile of caregivers of older adults with MS and the assistance they provide

Abstract

Purpose. To describe and compare spousal and non-spousal caregivers of older adults with multiple sclerosis (MS), thenature and extent of assistance they provide, and the challenges they experience in the course of their caregiving role.Methods. This cross-sectional descriptive study uses data from telephone interviews with 302 caregivers of older adults withMS. Descriptive statistics, Chi-square and Wilcoxon tests were used to generate and compare caregiver profiles. Aproportional odds model examined factors associated the provision of greater extent of care.Results. Spousal and non-spousal caregivers differed in age, sex, location of residence, and employment status. Thecharacteristics of the people with MS for whom they cared were very similar. Spousal caregivers assisted with more activities,although non-spousal caregivers provided equivalent caregiving time. Twenty percent of caregivers spent more than 3.5 hper day caregiving. Caregiving time was influenced by cognitive and ADL status of the person with MS, and the number ofcaregiving activities performed. Challenges reported by caregivers were similar.Conclusions. Both spousal and non-spousal caregivers of older adults with MS provide substantial assistance, andexperience many challenges. Rehabilitation professionals need to be aware of the diversity of caregivers and the assistancethey provide to facilitate appropriate support and resources.