Abstract
BackgroundIn Denmark, only generic health-related quality of life measures have been developed to assess quality of life in patients with eating disorders. So far, no disease-specific questionnaires have been translated and validated. The objective of this study was to translate the Eating Disorders Quality of Life Scale into Danish and to perform a preliminary validation of the questionnaire in a small sample.MethodsThe translation process was conducted according to recommendations from the World Health Organization, using the WHO-5 Well-Being Index as a reference standard. The validation process included 41 outpatients with eating disorders. Patients were recruited from specialized outpatient clinics in the Capital Region of Denmark and asked to complete the quality of life questionnaire and the WHO-5 Well-Being Index.ResultsThis study found poor agreement, but high correlation, between the two self-rating scales.ConclusionThe translated questionnaire was concluded to be valid. However, a replication study on a larger sample with more male patients and more extensive symptoms is necessary.
Highlights
In Denmark, only generic health-related quality of life measures have been developed to assess quality of life in patients with eating disorders
Of the 43 patients included in the validation study, two patients were excluded from the analysis due to missing data
An equal proportion of included patients were diagnosed with anorexia nervosa (AN; n = 12) and binge eating disorder (BED; n = 12), while eight patients were diagnosed with atypical AN, four patients with bulimia nervosa (BN), and five patients with atypical BN
Summary
In Denmark, only generic health-related quality of life measures have been developed to assess quality of life in patients with eating disorders. The objective of this study was to translate the Eating Disorders Quality of Life Scale into Danish and to perform a preliminary validation of the questionnaire in a small sample. The validation process included 41 outpatients with eating disorders. Patient-reported outcome measures of health-related quality of life (HRQoL) are of increasing interest and show that EDs can have a profound impact on a person’s life [4]. Studies report significantly worse HRQoL in patients with EDs compared to a norm population [5] and to patients with other psychiatric illnesses, including severe depression [6]. Half of the patients with an ED fulfil the diagnostic criteria for a psychiatric comorbid disease [8], such as anxiety or depression, further enhancing the risk of decreased HRQoL
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