Abstract
Vandervelde L, Dispa D, Van den Bergh PY, Thonnard J-L. A comparison between self-reported and observed activity limitations in adults with neuromuscular disorders. Objective To investigate the agreement between the self-reported and examiner-reported difficulties of patients with neuromuscular disorders (NMDs) in performing daily activities at home. Design A comparison between 2 methods of administering a measurement instrument. Setting Neuromuscular reference center in a university hospital. Participants Adult patients (N=57) with diagnosed NMDs living at home. Interventions Not applicable. Main Outcome Measure The ACTIVLIM questionnaire. Results The intraclass correlation coefficient, model 2,1 (ICC 2,1), between the measures was very good (ICC 2,1=.87), indicating a good agreement between self-perceived and observed measures. Conclusions The use of ACTIVLIM as a self-reporting questionnaire is a valid method for assessing activity limitations in patients with NMD.
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