Abstract
We describe ethical issues that emerged during a one-year CBPR study of HIV and human papillomavirus (HPV) vulnerabilities and prevention in two Pacific Islander (PI) communities, and the collaborative solutions to these challenges reached by academic and community partners. In our project case study analysis, we found that ethical tensions were linked mainly to issues of mutual trust and credibility in PI communities; cultural taboos associated with the nexus of religiosity and traditional PI culture; fears of privacy breaches in small, interconnected PI communities; and competing priorities of scientific rigor versus direct community services. Mutual capacity building and linking CBPR practice to PI social protocols are required for effective solutions and progress toward social justice outcomes.
Highlights
Community–based participatory research (CBPR), according to its fundamental principles, has the potential to engender social justice among its institutional and community partners by promoting ethical, egalitarian collaborations through all stages of a research project
We describe ethical issues that emerged during a one-year CBPR study of HIV and human papillomavirus (HPV) vulnerabilities and prevention in two Pacific Islander (PI) communities, and the collaborative solutions to these challenges reached by academic and community partners
A recent CBPR study of factors associated with obesity among Tongan, Samoan, and Marshallese youth in Southern California reported significant time pressures related to participant recruitment and data analysis (Tanjasiri et al, 2011)
Summary
Community–based participatory research (CBPR), according to its fundamental principles, has the potential to engender social justice among its institutional and community partners by promoting ethical, egalitarian collaborations through all stages of a research project. In spite of an impeccable pedigree and laudable ideals, when CBPR is applied on the ground in communities, practical realities, including ethical tensions, surface This can create barriers to reaching study objectives and being faithful to CBPR’s fundamental principles. Other than relatively brief mentions in these works, research ethics is not a focus of the literature on CBPR among PIs; and to our knowledge there have been no empirical studies of ethics in PI CBPR
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