Abstract

This qualitative study aimed to develop the first cognitive behavioural therapy model outlining the development and maintenance of disordered eating in type 1 diabetes and report on recovery strategies and resilience factors to improve previous theoretical models of type 1 diabetes and disordered eating. Twenty-three women (n=9 with type 1 diabetes and disordered eating, n=5 with type 1 diabetes recovering from disordered eating, and n=9 with type 1 diabetes without disordered eating) participated in semi-structured interviews. Data were analysed using grounded theory and individual cognitive-behavioural formulations were developed for each participant to inform the development/maintenance and resilience models. The development/maintenance model summarises commonly experienced vicious cycles of thoughts, feelings and behaviours in type 1 diabetes and disordered eating. The resilience model summarises strategies and knowledge acquired by those with type 1 diabetes in recovery from disordered eating and individuals with type 1 diabetes who did not develop disordered eating. Early adverse life events, past psychiatric history, perfectionist personality traits, difficult experiences around type 1 diabetes diagnosis and its relentless daily management sensitise individuals to eating, weight and shape cues. Alongside physical symptoms/complications, unhelpful interpersonal reactions and inadequate healthcare, vicious cycles of thoughts, feelings and behaviours develop. 'Good enough' psychological adaptation to type 1 diabetes, integrating type 1 diabetes into one's identity, self care and compassion around eating, weight and shape were key protective/post-traumatic resilience factors. This first cognitive behavioural therapy model of type 1 diabetes and disordered eating informed by personal experience will inform an intervention for type 1 diabetes and disordered eating.

Highlights

  • Psychiatric comorbidity in type 1 diabetes is high.[1,2,3] Comorbid disordered eating is twice as common in type 1 diabetes than peers without type 1 diabetes.[4]

  • We first explain the categories obtained from the grounded theory analysis which informed an initial model of the development and maintenance of disordered eating in type 1 diabetes

  • We explain the findings of the individual cognitive behavioural therapy formulations which informed us further on how the categories were related in the genesis and perpetuation of the disordered eating

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Summary

Introduction

Psychiatric comorbidity in type 1 diabetes is high.[1,2,3] Comorbid disordered eating is twice as common in type 1 diabetes than peers without type 1 diabetes.[4]. This model has been further developed to specify maintenance cycles involving dietary restriction leading to hypoglycaemia, binge eating and hyperglycaemia and purging or insulin restriction.[11]

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