Abstract
This study aims to introduce a novel blockchain-applied personal health records (PHR) application and validate its user experience. The system transmits the part corresponding to the patient’s personal information off-chain and prevents data forgery and falsification by storing encrypted data on-chain. Patients may easily trace the opt-in and opt-out history of their consent data and dynamically store the consent system for data exchange on the blockchain. A mixed-method study using a questionnaire, in-depth interviews, and usability evaluation were conducted for 30 participants. The system usability score was 74.0, indicating the high usability of the application. Those who were familiar with blockchain showed confidence in the application, but those unfamiliar wanted their data to be safe using another way. Most of the participants were interested in exchanging and using their medical data and considered security important but those unfamiliar wanted their data to be safe using another way. We found that participants were concerned about data security and considered a blockchain-based PHR as a novel way to store and exchange their medical information securely. Blockchain is not a visible technology. However, a blockchain-applied PHR must be able to win user trust through visualizations, certificates, and system descriptions.
Highlights
Accepted: 9 February 2022Currently, evidence-based medicine and data-driven analysis are trends in the medical field; the importance of medical data is increasing
We introduced a blockchain-applied personal health records (PHR) application that enables the exchange of data from hospitals and empowers patients to manage their own data
A blockchain-applied PHR is one of the most effective and safe ways to collect patient data. Participants could access their information at any time and from any location using a blockchain-applied PHR, which allows them to self-manage medical data collected through different channels
Summary
Accepted: 9 February 2022Currently, evidence-based medicine and data-driven analysis are trends in the medical field; the importance of medical data is increasing. Personal health records (PHRs) are important medical data that facilitate better healthcare services and patient safety [1]. When regular patients visit an emergency department (ED), medical staff can obtain their data. In the case of a sudden visit to a nearby hospital, especially in an emergency situation, knowing the patient’s history is difficult because patients may not remember their disease and dose histories or laboratory test results [3]. PHR allows patients to self-manage medical information collected through various channels, enabling them to access their medical records anytime and anywhere. There are advantages, such as the reduction of duplicate tests and prescriptions, improvement of quality of life through personalized health management services, and expansion of medical information exchange between hospitals
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