9th Nordic Social Pharmacy Conference 2019. Conference abstracts

doi:10.1016/j.sapharm.2019.09.006

Abstract

The purpose of this study was to describe the informed consent and assent experience for oncology research from the perspective of the participants: adolescents, their parents, and their physician providers.This descriptive mixed-methods study included the pilot use of the Quality of Informed Consent Questionnaire (QuIC) with an adolescent population and semi-structured interviews with adolescents, their parents, and their physician providers within 48–72 hours of the informed consent and assent discussion for a pediatric oncology clinical trial and again 6–9 weeks later.Adolescents and their parents scored considerably lower on part A of the QuIC than part B indicating a lower level of objective understanding of key elements of informed consent and assent. Qualitative interviews highlight participants' self-reported poor memory or recollection of key details of the informed consent and assent discussion paralleling the QuIC findings for objective understanding.Findings from this pilot descriptive study suggest that adolescents and their parents feel more informed than they actually are. This dichotomy of experience seems to have been mitigated by a strong sense of trust in and connection with their physician provider.Further exploration of adolescent and parent viewpoints regarding what they value as important in the content of the informed consent and assent and how that content is delivered is warranted. Additionally, understanding the origin of participants' misunderstanding of the key elements of consent and assent may illuminate areas for future intervention-based research focused on improving the overall quality of informed consent and assent discussions.

Highlights

Introduction and objectiveMisconceptions regarding antibiotics are seen to be a main reason for inappropriate use of antibiotics including skipping of doses, reuse of leftovers and failure to complete treatment, which can lead to antimicrobial resistance
Deprescribing of unnecessary medications is relevant in older adults with limited life expectancy, as they have a considerable use of drugs and are more susceptible to the potential harms of multiple medications
The validation of this final version was carried out among nursing home residents in the Region of Southern Denmark Results: The revised Patients’ Attitudes towards Deprescribing (rPATD) questionnaire was successfully translated into Danish, and the subsequent pilot test showed that the Danish version was acceptable to the nursing home residents. 159 participants were included in the validation

Summary

Background

The provision of high-quality pharmacy services is a societal requirement that enables people to have easy access to medicines and to advices concerning the use of their medicines. Pharmacists are traditionally taught that they are experts and in charge, and training is needed to adapt to a more patient-centered approach such as MI This workshop will bring together pharmacists with an interest in communication skills and intervention to improve medication- and lifestyle behaviour. Introduction to key principles and the “spirit” of MI Use motivational interviewing video clips to demonstrate key principles of motivational interviewinge how to do it and how not to do it Introduction to specific techniques, e.g. open-ended questions, reflective listening, affirmation, responding to resistance and summarizing Exercise about simple and complex reflections undertaken in subgroups followed by group discussion Role play using MI techniques Feedback, summary and reflection on learning outcomes After the workshop, participants will be able to: Explain the “spirit” and key principles of motivational interviewing Differentiate between good and poor performance in motivational interviewing Recognise statements from the patient that indicate motivation for change (“change talk”) Use some simple techniques of motivational interviewing

Results

Introduction