Abstract
There were 9,566 pediatric heart transplants reported to the ISHLT from 1982-2009.1 Every year, the ISHLT pediatric registry report survival statistics improve and, in addition, the number of children and adults undergoing transplantation for congenital heart disease continues to increase.2 With increasing numbers of pediatric patients surviving into adulthood with excellent quality of life,3 more young adult transplant recipients will receive care at adult centers. Transition programs are critical to support care for these young patients who are traditionally cared for at children’s hospitals. Transition is defined as a “complex set of beliefs, skills, and processes that facilitate the movement from pediatric care to adult centered care.”4 The goal of transition is to provide comprehensive, developmentally appropriate healthcare in a coordinated, uninterrupted, and seamless manner across centers and in partnership with patients.
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