Abstract

Abstract Introduction Care of the burn injured child is complex and highly individualized as no two burn injuries are exactly alike. In order to assess our outcomes in treating these children we have integrated the use of the Patient Reported Outcomes Measurement Information System (PROMIS), a standardized, valid and reliable PRO tool funded by the National Institute of Health (NIH) into our clinical practice in order to evaluate aspects of the patient’s health-related quality of life. The PROMIS pediatric assessment was developed to capture self-reported anger, depression, peer relationships, pain, and physical function. This study specifically assessed the PROMIS Pediatric Peer Relationship summary scores in burn survivors to assess quality of life. The goal of this study is to examine the relationship between such quality-of-life outcomes and burn injury related factors. Methods Following IRB approval, we performed a retrospective review of children with burn injuries who had completed the PROMIS at our institution between 2017 and 2019. Data collected includes patient demographics, burn injury information, PROMIS peer relationship T-scores and time since injury. Statistical analysis was conducted using chi-square, t-test ANOVA, or Pearson’s correlation coefficient. The PROMIS Peer Relationships Pediatric Item Banks assess self-reported quality of relationships with friends and other acquaintances. A standardized score, or T-score, of 50 is the average for the United States general population with a standard deviation of 10. A peer relationships T-score of 60 is one standard deviation (SD) above the average while a T-score of 40 is one SD below the average. A higher T-score correlates to a better social health. Results 164 pediatric burn patients completed 159 initial surveys. Burn injuries (n=164) consisted of the following types: contact (n=16), electrical (n=10), fire/flame (n=75), and scald (n=63) with approximately equal representation of females (n=81) and males (n=83). The mean age at injury was 6.9 years (median 6.4) with a mean burn TBSA of 21.8% (median 15.0). On average, the initial peer relationship score was 50 (median 49). Gender, type of injury, injury age, total TBSA, hospital days, ICU days, ventilator days, OR visits, and months since injury did not significantly affect the initial PROMIS score measurement. Conclusions This study of pediatric burn patients from a single US burn center during follow-up demonstrates that burn injury related factors appear to have no statistically significant effect on initial PROMIS Pediatric Peer Relationship score measurements. In addition, on average survivors have a quality of life as it relates to peer relationships that is on par with the US general population.

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