29 Living Was Such a battle, Dying became a Fight: the Development of a Forward Planning Tool for Health Care Decisions for Adults With Severe Learning Disabilities

Abstract

Introduction: Work with a hospice-at-home service and a learning disabilities service in 2007 highlighted the need to consider end-of-life care issues for disabled adults who lack capacity. Aim: To develop a Forward Planning Tool for healthcare decisions for adults with profound multiple learning disabilities (PMLD) to ensure appropriate end-of-life care and to incorporate …