27: Development of a Multiinstitutional Chronic Pelvic Pain Registry

Abstract

There is a severe lack of multi-institutional collaboration and general research into etiologies for and optimal treatments of chronic pelvic pain. Our objective was to develop a registry of chronic pelvic pain patients to be used by multiinstitutional researchers. The registry is a custom built web-based application that utilizes Adobe Coldfusion version 5 middleware connecting to an Oracle 9i database. Chronic pelvic pain centers and institutions in multiple countries. Chronic pelvic pain patients as defined by ACOG. Data are entered by research staff anywhere they have internet access. Research staff and physicians collect biological specimens which are stored and logged by staff. The registry currently contains 760 serum, plasma, and buffy coat aliquots from 46 subjects. Additional collection of biological specimens will include diseased and normal peritoneum, peritoneal fluid, endometrium, and myometrium. The registry is a HIPAA compliant, secure environment, accessible from any internet connection. User access is determined by the NYU research team. The online version of the registry has been completed and is currently in use at the NYU Medical Center. It is a highly scalable and adaptable online database. Specific protocols can be carried out within this database. The research possibilities within this environment are limitless.