Abstract
Introduction The importance of good nutrition in CF is well recognised. CF European Consensus guidelines recommend that children achieve good nutrition, aiming for a Body Mass Index (BMI) of the 50th centile [1]. Enteral nutrition (EN) via NG or gastrostomy should be used if nutritional goals are not met by other means. Objectives To assess if European Consensus nutritional aims are met and maintained after EN is started, the time scale, and identify reasons these may not be achieved. Method Data on BMI and energy intake from feeds was collected retrospectively from 16 patients (10 male), median age 8.5 yrs (2.5–16 yrs) at start of EN and then at 1/12, 3/12, 6/12, 1, 2 and 3 years after starting. Results See the table. Problems associated with EN included vomiting and diabetes. Time (yrs) after starting ENMedian BMI percentile% Patients ↑BMI% Patients →BMI% Patients ↓BMI% EAR Energy from feed09th (0.4th–2nd to 25th–50th)50 (30–82)1/1225th (2nd–75th)1003/1225th–50th (2nd–91st)464686/1225th–50th (9th–91st)50842125th–50th (9th–75th)17176642 (25–75)225th–50th (9th–75th)46272739th–25th (2nd–75th)3706345 (26–80) Conclusions BMI improves within 3/12 of starting EN, is maintained for 2 yrs and then declines, despite no change in prescribed EAR energy from feed. Reasons for this decline which may include adherence, tolerance or declining clinical status will be described.
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