Abstract
EBS is a group of genodermatoses with blistering above the dermal-epidermal junction and is the most common form of epidermolysis bullosa. Phenotypes vary widely, from mild acral blisters to severe generalized blisters and wounds. But, the impact of EBS severity on patient-reported outcomes and quality of life (QOL) remains unknown. Self-reported cross-sectional surveys were obtained from 2012-2016 via EBCare, an international online EB registry. We analyzed 203 subjects who self-reported a diagnosis of EBS.
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