Abstract

Abstract Background Breast reconstruction presents women with life-changing decisions at a time of immense pressure due to a concurrent cancer diagnosis. Objectives To assess whether patient satisfaction with breast care teams, patient autonomy in pre-operative consultation and information provision at Ysbyty Glan Clwyd (YGC) met the standards published in the National Mastectomy and Breast Reconstruction Audit (NMBRA), 2011. To use data collected to generate a novel decision-making aid. Method A patient satisfaction questionnaire, ‘Betsi-Q’, was created and sent to 100 mastectomy patients from YGC. Statistical significance was tested using Chi-squared test, T-test (Yates correction) and Z- score. Results Completed questionnaires were returned by 44 respondents (44%). Although shy of the 90% NMBRA recommendation, patient satisfaction with the team was reported high in 35/41 respondents (85%). The audit identified 36 respondents (86%) felt they made an informed decision regarding breast reconstruction, exceeding the 80% NMBRA recommendation. Information regarding the emotional and sexual benefits of breast reconstruction over mastectomy alone, were discussed with 10 respondents (26%), despite recommendations to discuss with all patients. Exploration of more than one option for breast reconstruction was only reported in 29/42 respondents (70%), below the 90% NMBRA recommendation. Conclusions Patient satisfaction with the team at YGC is high but efforts to ensure all patients are making an informed decision should be made. The decision-making tool designed alongside this audit aims to address these recommendations. Early identification and correction of misinformation, along increasing the variety of resources for patient education will be beneficial to manage expectations and enhance patient experience.

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