1639P MACADAM (MesotheliomA ClinicAl DatA platforM): A reference database as a tool for large-scale collaborative research

Abstract

Electronic Medical Records (EMR) and administrative claims (AC) are non-negligible source of information for the constitution of observational databases, a fundamental source of information in rare cancers. Pleural Mesothelioma (PM) is a rare cancer with a dismal prognosis. Despite the progresses in the cure achieved in the last years, only few therapeutic options are currently available. Hereby we describe the constitution process of a EHDEN (European Health Data Excellence Network) database for PM in a center at high volume for PM.