160 Assessment of Quality of Care in Lung Transplant Patients

Abstract

residua or need for future surgery, or complex/palliated. Results: By self-report, mean physical and psychosocial QOL scores in HTx were significantly lower than healthy (p .001) or mild CS (p .01) groups, however, the HTx group had significantly fewer symptoms than children with CS, p .01. Among psychosocial scales, school QOL was significantly lower in the HTx group than the overall CS (p .01) and healthy groups (p .01). HTx cognitive problem scores were not significantly different from moderate or complex CS groups. By self-report, there were no significant differences in emotional and social QOL between the HTx and CS groups. By parent-report, HTx mean physical and psychosocial QOL scores were significantly lower than the healthy group (p .001), but physical QOL was significantly better than the severe CS group (p .01) and symptoms significantly less than all CS groups. HTx parents reported lower school QOL than CS and healthy groups (p .001) and lower social QOL than CS patients. Conclusions: While pediatric HTx recipients experience significant symptomatic improvement, they remain at risk for impaired psychosocial QOL similar to children with residual or palliated heart disease, especially related to school QOL.