12.3 Beyond the Consent Form: Case Presentation and Discussion

Abstract

Working with families and pediatric patients presents an additional layer of complexities within the informed consent model. How do we proceed when the patient’s desire for medical affirmation and the parents’ concerns regarding off-label use of medications seem like an unresolvable conflict? How does one tailor informed consent discussions for gender-affirming treatment for a 13-year-old? A 17-year-old? What can an existing neuropsychological profile tell us about what a patient may need in such a discussion? What role does a minister play? A mentor? A community?