치매 가족돌봄제공자의 코로나19 상황에서의 치매관리지원프로그램 이용경험: 포커스 그룹 인터뷰에 기초하여

Abstract

Objectives: In this study, we explore the experience of family caregivers using dementia management programs for patients with dementia during the coronavirus disease 2019 (COVID-19) pandemic. Methods: Three focus group interviews were conducted with 14 family caregivers who enrolled in this study. All interviews were recorded and transcribed as they were spoken, and a qualitative thematic analysis method was employed for the research questions. Results: Three categories were derived: confusion about dementia care during the COVID-19 situation, a sense of transition because of dementia support programs, and wishes for further care. In addition, 7 clusters of themes and 14 themes were identified. During the COVID-19 pandemic, family caregivers of patients with dementia not only experienced the burden of dementia but also frustration caused by social isolation. By participating in various support programs, these families re-recognized dementia, gained empathy through exchanges on dementia management, and embraced their identity as dementia managers. Moreover, the families suggested that the current dementia family support programs required quantitative and qualitative improvements and customized diversification by levels. Conclusion: The findings suggest that a limit exists to meet the various needs of family caregivers who receive services. Further, developing the need for dementia management according to the disease stage or care needs of patients with dementia is necessary.