Особенности и факторы функционирования семьи с ребенком-инвалидом: социологический анализ

Abstract

The relevance of the topic is primarily due to the fact that the number of children with disabilities in Russia con-tinues to be quite high, at the same time, insufficient research attention is paid to the functioning of a family with a disabled child. The main results of our work are related to the analysis of the structure of a family with a disabled child, the specifics of its functioning, the existing dysfunctions and their causes, dynamics, characteris-tics and the most important needs of the family, the possibilities of their satisfaction and family support. It is revealed that the analyzed type of families usually relies on their own resources in the functioning and rehabili-tation of the child; incompleteness of the family structure is common. As the child grows up, there is a change in the needs of the family: from medical assistance to domestic assistance. There is an increasing need for assistance in the implementation of such a family of its main functions – reproductive, socialization, economic, caring for family members, etc. To create conditions to support the functioning of a family with a disabled child, it is proposed to develop the digitalization of individual services and the institution of social supervision of the family. The novelty of the study also consists in appealing not so much to the opinions of experts as to the anal-ysis of the experience, judgments, expectations and recommendations of the parents themselves.