Abstract
Studying the quality of life of patients, in particular children, is one of the important areas of modern medicine. Aim. To assess the quality of life of children who were operated on for congenital heart disease. Materials and methods. 100 children from the western regions of Ukraine aged 6 to 18 who were operated on for congenital heart disease and 100 of their parents were interviewed. A quantitative assessment of the quality of life of children was carried out using the international standardized Pediatric Quality of Life Inventory (PedsQLTM 4.0 Generic Core Scales, France) survey for children with cardiovascular disorders and their parents. In total, 57% (57 people) of boys and 43% (43 people) of girls took part in the study. The share of surveyed mothers is 84% (84 people), and fathers - 16% (16 people). Statistical processing of materials was performed using the Statistica 6.0 software package. The reliability of the difference in indicators was assessed using the Student's t-test. The average value (X) and the error of the average (s) were calculated. The difference of P<0.05 was considered statistically significant. Results. According to the children's questionnaire, when studying the quality of life of children, the indicators of the physical functioning scale had an average value of 67.31±19.52 points; according to parental questionnaires, the average value of this scale was 62.81±20.58 points. According to information from the child questionnaire, the psychosocial functioning scale had an average value of 71.06±15.17 points and 64.89±17.89 points according to the parental questionnaire. It was found that 62% of children rated the overall quality of their health better than their parents; 26% of children assessed the quality of their health almost the same as their parents; and only 12% of children rated the quality of their health worse than their parents. Conclusions. The overall assessment of the quality of life according to the children's questionnaire was 69.18±17.34 points, while according to the parental questionnaire it was 63.85±19.23 points. In some aspects, parents rated the physical and psychosocial quality of life of their children after heart surgery more negatively than the children themselves, but there was no significant difference (P˃0.05). No conflict of interests was declared by the authors.
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