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Nonbinary people: Perceived social support in personal relationships and (virtual) communities

Background Nonbinary individuals grapple with societal and individual pressures from a pervasive lack of comprehension, acknowledgment, and affirmative social representation. This dearth of a societal conversation recognizing the validity of nonbinary identities leads to instances of discrimination. Social support is recognized as a buffer to these experiences and is positively related to better physical and psychological health. Aims To explore the processes nonbinary people experienced with their most significant relationships, be it romantic, friendships, and/or family members, before and after disclosure of nonbinary identification. Additionally, we sought to contextualize their participation, or nonparticipation, in activist groups and virtual communities. Methods The present study adopts a qualitative methodology to build an initial understanding of the perceived social support of non-binary people in Portugal. We conducted non-structured life story interviews with thirty-three Portuguese nonbinary people and analyzed the collected data using thematic analysis. Results The findings are illustrated by two main themes: the Flow of Relational Support, where we explored the support perceived or not by the most significant relationships; and The Search and Find of Community Support, where we characterized the search and find of support through the participation in activist and virtual communities/groups. Discussion The current findings illustrate the positive influence of perceived social support on the experiences of nonbinary individuals. Of note, these experiences were highly diverse, with no participants reporting comprehensive support from all the sources explored. Additionally, the detrimental impact of perceiving a lack of support in some critical areas remained prominent. Individuals struggled to gain recognition and validation, resulting from a lack of relational support and a reluctance to seek out and find community support. Nonbinary individuals confront intense scrutiny and prejudice from the broader social sphere, compromising their ability to live openly.

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Reflexive professionalisation in social work practice development, research, and education: the vital challenge of democratic citizen participation

ABSTRACT This paper examines how the renewed critical emphasis on reflexive professionalisation in the field of social work can take into account the challenges regarding the politics of democratic participation of service users as citizens while working towards social justice. Our contribution is based on the findings of a collaborative European research project involving researchers, students, public service organisations, service user organisations, and educators from various European countries. The aim of the project was to gain a differentiated and in-depth understanding of how reflexive professionalisation in social work may function as a concept and practice that stimulates social care that integrates a commitment to democratic citizen participation. Based on a qualitative content analysis of 21 transnational empirical case studies, we identify four vital dimensions of developing reflexive and democratic participatory approaches in social service contexts: (1) cultivating a historical awareness of how the professional identity and mandate of social workers has been and is currently (nationally) defined; (2) articulating the professional positions and normative value orientations that underpin (participatory) practice development; (3) reflecting on the constructions of problems, service user identities and related actions; and (4) creating space for ambiguity, risks and mistakes.

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Frailty phenotype in heart failure: A condition that transcends age

Introduction and objectivesStudies on younger frail and pre-frail subjects suffering from heart failure (HF) are scarce, except for those focusing on the critically ill. This work aims to describe differences between younger (<65 years) and older (≥65 years) pre-frail and frail HF outpatients regarding their nutritional, functional and clinical statuses. MethodsIn this cross-sectional study, a sample of 99 HF frail and pre-frail patients (aged 24–81 years, 38.4% women, 21.2% frail, 59.6% <65 years) was recruited from an HF outpatients’ clinic in northern Portugal. Muscle mass was estimated from mid-upper arm muscle circumference. Weight status was assessed using body mass index. Hand grip strength and gait speed were measured. Medical records were reviewed. Associations between participants’ characteristics and age were calculated using binary logistic regression. ResultsAge was associated with hand grip strength (OR=0.90), gait speed (OR=0.01) and diabetes (OR=4.95). Obesity, muscle mass or heart failure functional classes were not associated with age categories. ConclusionThere is an overall lack of differentiation between younger and older HF patients with the frailty phenotype. Therefore, frailty phenotype should be assessed in all patients, regardless of age. Hand grip strength seems to be a good predictor for older age and more studies are needed to define age-specific hand grip strength cut-offs for HF populations.

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The Experience of Receiving and Transmitting a Genetic Disease

Legacies are key components of the aging experience. Three types of legacies have been described: biological, material, and values. This paper focuses on biological legacy, centering on the experience of receiving and transmitting the genes associated with transthyretin-related amyloid familial polyneuropathy (TTR-FAP). This study adopts the self-confrontation method (SCM) to explore narratives about biological legacies on individuals affected by TTR-FAP. The study included four participants, who are both in the receiver (affected by the condition, meaning they have inherited the disease-causing mutation) and in the transmitter (potentially passing on the mutation to their children) positions. The participants are two men and two women, aged 45–65 years old; all have children. Data analysis was performed by following the SCM, identifying life themes and determining affective meanings. The main findings suggested include: (1) in the receiver position, participants focus on treatment and adaptation regarding the disease attached to both negative and positive affective meanings; (2) in the transmitter position, they focus on awareness of the disease in children and grandchildren attached to negative affective meanings. Results are relevant for informing genetic counseling services and professionals about these patients’ feelings toward their condition.

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