Quality Of Life For Members Research Articles

Transcending Limitations: A Phenomenological Exploration of How Hygge Practices Enrich the Lived Experiences of Adults with Cystic Fibrosis.

Hygge practices embody joy, peace, mindfulness, coziness, and conviviality. Cystic fibrosis (CF) is a progressive condition with complex therapies and physical limitations. Little is known about how hygge practice may impact individuals living with CF. A qualitative study explored how adults with CF use hygge practices to promote wellness and cope with their disease. A purposive network sample of 15 adults with CF who utilized hygge practices completed semistructured audio-recorded telephone interviews. Recordings were transcribed and analyzed using Colaizzi's thematic analysis approach. Results reveal that hygge practices influenced individuals' aesthetics, attitudes, and activities, deeply impacting the physical and emotional experience of living with CF. Incorporating hygge into CF care may improve psychological well-being and quality of life for members of this community.

The Impact of Telenursing on Self-Care Management and Quality of Life for Chronic Disease Management Program (PROLANIS) Members with Type 2 Diabetes Mellitus at the Garuda Health Center in Bandung City, Indonesia, in 2022

Diabetes Mellitus (DM) type 2 is rapidly becoming one of the world's most common non-communicable diseases (NCDs), and one of the most frightening problems in public health. Patients with type 2 diabetes mellitus must be able to manage their disease independently to control blood glucose and prevent complications. Community empowerment and social engineering can be done by nurses through remote communication with patients via telenursing. Identifying the Effect of Telenursing on Self-Care Management and Quality of Life for Members of the Chronic Disease Management Program (PROLANIS) with Type 2 Diabetes Mellitus. Using the pre-experiment design method with one group pretest-posttest design. The research sample consisted of 45 respondents, 15 male respondents and 30 female respondents, taking the sample using accidental sampling. Data collection using the Summary of Diabetes Self Care Activities (SDSCA) and Diabetes Quality of Life (DQOL) instruments the test used is the Wilcoxon Signed Ranks Test. All manuscripts must contain an abstract, which summarizes the purposes of the work, the methods, the most significant results, and the conclusions. Based on the results of the Wilcoxon test, with a 95% confidence level p-value (0.001). There is an effect of telenursing therapy on improving the quality of life of PROLANIS members with type 2 diabetes mellitus. It is hoped that respondents and elders can improve self-care management and quality of life through the stages of Diabetes Self-Management Education (DSME), which can be carried out daily under health workers’ guidance through telenursing or family.

Strengthening Health in Mixed-Age Housing Communities

Strengthening Health in Mixed-Age Housing Communities

Strengthening Health in Mixed-Age Housing Communities

The aim of this article is to present the findings of a secondary analysis of quantitative data collected from a public housing community composed of older and disabled adults (n=100) ages 18-92 (Study 1 -2011) and relate these findings to a subsequent qualitative study (Study 2 -2015) completed in the same community. Both study samples included community residents who resided in three high rise buildings situated in one square block in a metropolitan setting. Both older and younger residents’ concerns, including perceived health, psychological and social needs were analyzed using Bronfenbrenner’s social ecology framework. Community residents were predominately African-American with 77% over 50 years of age. Most study measures identified little difference between the older and younger groups. Key physical, social and environment challenges identified included: chronic medical conditions, abuse and safety, psychological distress, and social isolation. A subsequent qualitative study was conducted with older women (50+) within the same community (2015). The qualitative study focused on the life course experiences of women (n = 25) who were survivors of interpersonal trauma. All groups in both the quantitative secondary data analysis and the qualitative study reported low functioning in health and mental health. They also reported social isolation and safety concerns. Identifying the health and well-being related needs of individual housing communities and examining experiences and perceptions of residents should become a priority in designing community interventions to reduce health disparities and improve health and quality of life for members of vulnerable populations. Entities and providers focused on this population should carefully examine how environmental influences such as social isolation and safety concerns impact chronic physical and mental health outcomes.

다문화가족지원법제에 대한 문제점과 개선방안

다문화가족지원법은 다문화가족 구성원이 우리나라에서 정착하여 안정적인 가족생활을 영위할 수 있도록 다방면에 걸친 지원을 통해 다문화 가족 구성원들의 삶의 질을 향상시키고 궁극적으로 이들과의 사회 통합에 기여하기 위해 마련된 법률이다. 이법은 2008년 3월 21일 법률 제8937호로 신규 제정되어, 지금까지 총 6차례 개정을 걸쳐 종래의 미흡했던 부분을 개선하였고, 2015년 2월18일 현재 이자스민의원 등 12명이 발의한 일부개정안이 제출되어있는 상태이다. 2015년 현재 우리나라에 체류 외국인의 숫자가 150만 명을 넘어선 가운데 본격적인 다문화사회로 진입했다고 볼 수 있다. 다문화가족의 구성원이 안정적인 가족생활을 영위할 수 있도록 각종 지원정책의 기반을 마련했다는 차원에서는 큰 의미를 둘 수 있으나, 현재 다문화가족지원법과 관련된 법률들이 사회변화를 수용하지 못한다는 새로운 문제점이 대두되어 본 논문에서는 그에 대한 분석을 통하여 현실사회에 적절하게 대응할 수 있는 입법방안을 제시하고자 한다. Multi-Cultural Family Support Act means that to lead a stable family life in Korea by improves the quality of life for members of multi-cultural families through the extensive support and ultimately it refers to a law designed to contribute to the integration between society and them. This Law was newly enacted as Law No. 8937 in March 21, 2008. And through the six times amendments it improve the part of the lack also now in February 18, 2015, some amendments are submitted by Jasmine Lee with 12 lawmakers. Now in 2015, the number of foreigners who living in Korea are beyond 150 million and it can see that has entered into a full-fledged multi-cultural society. And it can place a greater significance that had laid the foundation of the various support policies to lead a stable family life for members of multi-cultural families. However, the problem that much current law which associated with the Multi-cultural Family Support Act cannot accept the social changes has emerged. Thus, in this paper try to present a legislative plan that can respond appropriately to the real world through the analysis of it.

Proposed Methodology of Health Education for Cultural Diversity. A Working Tool: Method Apprêt

Our aim is to offer a methodological proposal of the apprêt method, applied to a program of Health Education and Intercultural Education from the perspective of cultural diversity. It is intended to be developed as a part of an Initial Vocational Training Program, in which right now there is a high percentage of enrolled students from different cultures. So as to provide a proposal which enables inter-cultural relations from the field of Health Education in the Initial Professional Qualification Programmes (PCPI).Working on this aspect helps us to reflect and identify problems affecting to both the quality of teaching and the quality of life for members belonging to plural-educational communities.

Quality of Life for Members of Swedish Prostate Cancer Patient Associations

Prostate Cancer Patient Associations (PCPAs) have become common. The aim of this study was to evaluate the quality of life of patients belonging to PCPAs. Members of 10 PCPAs in Sweden with prostate cancer completed 2 quality of life questionnaires (Quality-of-Life Questionnaire [QLQ-C30] and Prostate Cancer Symptom Scale). Of 2,028 members, 1,301 (64%) responded to the survey. Sixty percent of the members felt "healthy," and 38% were "free from the cancer." Ninety-five percent scored >80 on the physical function scale compared with 44% on the overall quality of life/health scale. The most severe symptom was sleeping disturbances (mean = 29). Seventeen percent scored "Quite a bit/Much" tiredness. More than 50% did not report any bladder or bowel problems. Fifty percent had "Much" sexual problems, and almost 80% did not have sufficient erection. Those reported as being "disease free" scored higher on the functioning scales than those with "metastatic disease." Those with an experience of a "metastatic disease" had more symptoms than those with less advanced disease. This is the first descriptive study of quality of life in members of Swedish PCPAs with prostate cancer. These findings show that it is possible to gain valid data to further study the situation of patients living with prostate cancer by collecting data from PCPAs.

Self-rated quality of life in celiac disease.

As much as 1% of the gluten-consuming world is gluten-intolerant. New screening methods are increasingly identifying gluten intolerance in individuals previously free from health problems. The often-abrupt major change in diet may adversely affect the patient's quality of life. Our aim was to evaluate self-perceived quality of life in a large cohort of adult celiac patients after at least one year of a gluten-free diet. In all 581 members (410 females) of five regional celiac societies were on a gluten-free regimen for at least one year. In this cross-sectional study, a modified version of the Zung Self-Rating Depression Scale was administered to the 581 patients from five Italian regions. Most patients correctly defined celiac disease, and compliance with the gluten-free diet was high, although reporting bias cannot be excluded. Most felt well (83.6% "very well" and "well"); consequently, anxiety and depression scores were low. Happiness also scored low. Most participants did not feel that a gluten-free life differentiated them from the general population. Women and patients diagnosed after 20 years of age had better dietary compliance, but more problems in their social life. Happiness scores were higher in patients diagnosed before 20 years of age. Anxiety and depression were infrequent in this group; however, anxiety was frequently related to feeling different from the general population, and depression to an unsatisfactory sexual life. In conclusion, celiac disease does not appear to be associated to a low level of self-perceived quality of life in members of the Italian Celiac Society.