Community-based Participatory Research Principles Research Articles

The HIV SEERs Project: A Qualitative Analysis of Program Facilitators’ Experience

HIV-related stigma creates barriers to HIV testing, medication adherence, and retention in care. Guided by the principles of community-based participatory research (CBPR) and in collaboration with community health workers (CHWs), the Stigma-reduction through Education, Empowerment, and Research (SEERs) project was developed with and for youth living in Nakuru, Kenya to reduce HIV-related stigma. The purpose of this qualitative study was to examine the experiences of the CHWs serving as SEERs facilitators. To evaluate SEERs, 37 facilitators completed open-ended survey questions to gather their experiences and recommendations for future program implementation and sustainability. Participants’ mean age was 30.58 (standard deviation = 9.62), ranging from ages 18 to 53. Thematic content analysis was used to categorize (a) facilitators’ experiences and the community impact of the SEERs project, (b) lessons learned, and (c) challenges to sustainability. Recommendations will be used to modify the SEERs project, improve implementation and sustainability strategies, and may provide guidance for similar CBPR projects.

The Development of a Collaborative Self-Evaluation Process for Community-Based Participatory Research Partnerships Using the Community-Based Participatory Research Conceptual Model and Other Adaptable Tools.

Established community-based participatory research (CBPR) partnerships need tools to assist with self-evaluation of the effectiveness and engagement with CBPR principles and to inform ongoing work. A growing part of the CBPR field is focused on the evaluation of partnering processes and outcomes. The Rochester Healthy Community Partnership (RHCP), a partnership with more than a decade of engagement in health promotion research, performed a self-evaluation in collaboration with the University of New Mexico Center for Participatory Research (UNM-CPR). We collaboratively developed and implemented a facilitated self-evaluation using adaptations of existing tools and the CBPR conceptual model. Partners contributed through surveys and qualitative interviews. Initially, data were analyzed collaboratively by members of RHCP and UNM-CPR, but RHCP partners further processed and consolidated findings, leading to the development of key questions that guided a full partnership discussion of action steps. Our process confirmed the adaptability of existing tools and the CBPR conceptual model for the purpose of partnership reflection and self-evaluation. We offer the key findings of our assessment of partnering practices and directions for the future, and share our approach to collaborative analysis and dissemination. Our discussion includes lessons learned, with applicability to other established partnerships. Our experience indicates that collective reflection is empowering for members of established partnerships, which can be facilitated by engagement in self-evaluation through the use of adapted, available tools. The incorporation of participatory processes adds complexity, but leads to a level of resonance and usefulness that would not have been obtained from a traditional evaluation.

Momentum and Longevity for Tribally Driven Health Equity Science: Evidence from the Gathering for Health Project.

American Indian health disparities have reached crisis levels, and there is a need to develop culturally congruent interventions through meaningful tribal involvement and ethical community-oriented approaches. Hence, it is imperative that researchers and university administrators better understand how research translation occurs for tribally driven health-equity research projects. Utilizing thematic analysis methods, the authors examined documents from a 12-year community-based participatory research partnership to elucidate factors that ignite momentum and support partnership longevity. The overarching finding was that trust and respect provide a foundation for momentum and longevity and are closely intertwined with other themes identified in analyses. Seven themes were extrapolated and classified into two domains: (1) investments, which are catalyzing factors that advance research, and (2) intermediate processes, which link investments to success. Investment themes include Indigenous scholar involvement, time and effort, establishing rapport, and clear and appropriate communication. Intermediate process themes include generative colearning, active participation, and recognition and celebration. Community-based participatory research principles were reflected in these findings. This study also upholds prior published work on Indigenous research methodologies, promotes the lived experiences of Indigenous people, and contributes to Indigenous theory building and science.

Community-Engaged Approaches to Address the Ethical Concerns of Maternal Mental Health Disparities Research.

Participatory research approaches have brought to the forefront the ethical obligations that researchers have towards underserved communities. We describe how a community-academic partnership used community-based participatory research principles and structure to develop a human subjects research protocol and to address the ethical concerns community stakeholders had regarding maternal mental health research with Black women.

Public Participation in Air Sampling and Water Quality Test Kit Development to Enable Citizen Science.

Public participation in environmental data collection is a rapidly growing approach providing opportunity for hands-on public engagement in environmental field studies. This methodology is important when addressing community-identified exposure concerns. Our goal was to establish an academic-community partnership between University of Cincinnati (UC) researchers and local officials and residents of Guernsey County, Ohio, to address their interest in assessing environmental quality near proposed and operating natural gas extraction (NGE) waste sites. A pilot research study was developed using community-based participatory research principles. A community resident was trained to collect air samples. Air was sampled at 10 locations for 63 volatile organic compounds (VOCs). Water quality test kits were developed in partnership with local middle and high school teachers. Community partners were involved throughout the project. VOCs were detected at all locations. Nineteen unique VOCs were detected; one was above the recommended exposure level. Findings were reported back to local officials and community members. Water quality test kits were developed and then piloted in middle school and high school classrooms. Academic-community partnerships were instrumental in the identification of sampling locations, obtaining the participation of landowners, and conducting sampling. Measuring the impact of NGE activities on air quality is challenging owing to competing exposures, limited resources, and access to sites. Water quality test kits were found by Guernsey County teachers to be useful tools in the classroom.

The Continuum of Community Engagement in Research: A Roadmap for Understanding and Assessing Progress.

The past two decades have been marked by increased community involvement in the research process. Community-engaged research (CEnR) is increasingly promoted in the literature, and academic programs with a community-academic partnership focus. Community-based participatory research (CBPR) is an approach to frame equitable community involvement in research and is a critical component of the CEnR continuum. As with CEnR, noted benefits of using CBPR expressed in the literature, which include enhancing the relevance and application of the research data, expertise to complex problems at all stages of research, overcoming community distrust, and improving community health. This article presents a community engagement (CE) model that includes seven defined designations for CEnR. In addition, this model includes equity indicators and contextual factors for consideration at the various levels of engagement along the continuum. The CE model described in this article combines the principles of CE and CBPR in conjunction with a continuum model. The continuum integrates a focus on health equity and contextual factors providing perspectives from both community and academic partners at each point of engagement. A broadly defined CEnR continuum will allow researchers, community members and organizations to readily identify 1) where they are on the continuum of CEnR, 2) appropriate access points to enter the continuum based on existing contextual factors, and 3) actions to promote progression on the continuum. Funders have the opportunity to specify the appropriate level of CE needed to accomplish the goals of their identified priorities.

Development and Implementation of Peer Leader Training for Community-Based Participatory Sexual Health Research.

Building the collective capacity of racialized women to meaningfully lead and engage in research is critical to health equity. To address the silence and stigma related to HIV/sexually transmitted infections (STIs) among South Asian women in Canada, peer leadership and engagement were identified as important strategies to promote open discussion about sexual health. Underpinned by the principle of 'nothing about us without us', the objectives of the Story Sharing for Sexual Health (SSSH) research study included engaging and training South Asian women peer leaders to become an integral part of the study and build community research capacity. To achieve these objectives, it was critical to support the peer leaders in gaining a thorough understanding of the research ethics, protocols and teamwork principles, and to consolidate skills in group facilitation and community engagement. The peer leaders attended four full-day training sessions on the social determinants of health and gender equity for racialized populations, HIV/STI and sexual health in the context of South Asian communities, community-based participatory research (CBPR) principles, skills in focus group facilitation, community partnerships building, and storytelling epistemologies. A training manual was developed. Evaluation of the training program included 1) evaluation forms, 2) process evaluations through journal writing and feedback sessions, and 3) implementation outcomes. The SSSH peer research training program was effective. Peer leaders demonstrated effectiveness in liaising with partner agencies, engaging South Asian women in sexual health discussion, completing CBPR activities and team building. Knowledge generated can be applied in CBPR with other racialized women populations.

Research Advocacy Training Program Benefits Diverse Older Adults in Participation, Self-Efficacy, and Attitudes toward Research

Research Advocacy Training Program Benefits Diverse Older Adults in Participation, Self-Efficacy, and Attitudes toward Research Rebecca L. Dillard, MA, Molly Perkins, PhD, MA, Ariel Hart, Chaohua Li, Ron Wincek, David Jones, and Madeleine E. Hackney, PhD What Is the Purpose of this Study? The Developing a Research participation Enhancement and Advocacy Training prograM for diverse Seniors (DREAMS) program aims to engage diverse older adults in community-based participatory research (CBPR) as educated research participants and advocates across research disciplines. In this study we sought to: • Educate stakeholders about the value of research and the importance of their participation and provide them with opportunities to participate in Patient Centered Outcomes Research (PCOR) via a two-part health education (part I) and research advocacy training program (part II). • Examine the effects of DREAMS on health literacy, psychosocial function (depression, participation, and quality-of-life domains), beliefs and attitudes toward research, and self-efficacy in diverse groups of older adults. • Compare effect of DREAMS participation of individuals who completed only part I of DREAMS versus individuals who completed both parts I and II. We hypothesized that both groups would benefit from DREAMS, but that greater benefits would be apparent among DREAMS part II completers compared with those who completed only part I. What Is the Problem? • Older adults, particularly those in disadvantaged and underserved minority groups, have historically been underrepresented in research despite their being disproportionately affected by health disparities, negative social determinants of health, higher rates of adverse health outcomes, and chronic illness and multimorbidity. • Historical mistreatment in biomedical research contexts, lingering distrust of the research community, and, importantly, a lack of understanding/knowledge about the research process, among other factors, perpetuate the dearth of minority and low socioeconomic status older adults in scientific research. • Engagement of the scientific community with diverse groups of older adults is necessary to overcome challenges with research recruitment and also to appropriately address health disparities in research and clinical settings. The preparation of a diverse cohort of older adults to be active in PCOR is vital to enabling clinical investigators to create projects that will improve health care delivery and health outcomes for older populations. What Are the Findings? • Educating seniors about health and the research process in a senior-friendly, highly participatory manner can increase research participation and improve health literacy and psychosocial health among underserved seniors. • Targeted training in health education (e.g., to specifically address misconceptions and fears) plus exposure to research advocacy resulted in improved attitudes and knowledge regarding research. [End Page 363] • Our study findings suggest that advocacy training in particular may impact older adults’ willingness to engage with the scientific community and could lead to improvements in participants’ overall quality of life. Who Should Care Most? • Researchers and academic institutions. • Older adults, particularly those in disadvantaged and/or minority groups. • Clinicians and those working on translation of scientific research to clinical practice. Recommendations for Action • Increased PCOR/CBPR participation by informed older adults across multiple racial/ethnic and socioeconomic status will allow researchers to better characterize the health care challenges diverse older adults face, leading to better health outcomes and decreased burden and cost to health care systems. • Broad dissemination of health education and research advocacy training grounded in CBPR principles to bolster recruitment efforts of this largely overlooked population into research. • A pared down approach for general health knowledge delivered in shorter time stints and/or in clinic settings may be appropriate for patient/potential participants and clinicians and researchers. [End Page 364] Rebecca L. Dillard Urban Health Initiative, Emory University School of Medicine Emory Center for Health in Aging, Emory University Molly Perkins Emory Center for Health in Aging, Emory University Division of General Internal Medicine and Geriatrics, Emory University School of Medicine Center for Visual and Neurocognitive Research, Atlanta VA Medical Center Ariel Hart Emory Center for Health in Aging, Emory University Division of General Internal Medicine and Geriatrics, Emory University School of Medicine Chaohua Li Rollins School of Public Health, Emory University Ron Wincek Community Member/Patient Stakeholder Advisor Community Affiliate, Emory Center for Health in Aging David Jones Community Member/Patient Stakeholder Advisor Community Affiliate, Emory Center for...

Applying a Community-based Participatory Research Approach to the Development of a Structured Assessment Tool: A Case Study in a Multiservice Youth Initiative

Adolescence is a critical time to intervene with youth at risk of serious harmful behaviors, such as violence, and to ensure that key developmental needs are met. There are a number of research-based tools and programs that address these goals, but real-world implementation presents challenges that limit the feasibility of these strategies in many settings. Cost, lack of implementation infrastructure, and concern about local fit and buy-in all contribute to the limited use of research-based tools in community settings. These challenges are particularly prominent in community-wide initiatives which coordinate efforts across multiple systems. Successful examples of efforts and strategies to overcome these challenges are needed. This paper presents a case study of a community-based participatory research (CBPR) orientation employed in the development of an assessment and referral system within the comprehensive service network of a youth violence prevention initiative in Seattle, WA. Findings from qualitative interviews and tool validation analyses illustrate the feasibility and utility of applying CBPR principles to tool adaptation efforts. Our experience demonstrates the value of a CBPR approach in balancing provider needs with research-based assessment practices to ensure youth receive well-targeted services across multiple service settings.

“No more falling through the cracks”: A qualitative study to inform measurement of integration of care of HIV and opioid use disorder

IntroductionIntegration of HIV- and opioid use disorder (OUD)-related care is associated with improved patient outcomes. Our goal was to develop a novel instrument for measuring quality of integration of HIV and OUD-related care that would be applicable across diverse care settings. MethodsGrounded in community-based participatory research principles, we conducted a qualitative study from August through November 2017 to inform modification of the Behavioral Health Integration in Medical Care (BHIMC) instrument, a validated measure of quality of integration of behavioral health in primary care. We conducted semi-structured interviews of patients (n = 22), focus groups with clinical staff (n = 24), and semi-structured interviews of clinic leadership (n = 5) in two urban centers in Connecticut. ResultsWe identified three themes that characterize optimal integration of HIV- and OUD-related care: (1) importance of mitigating mismatches in resources and knowledge, particularly resources to address social risks and knowledge gaps about evidence-based treatments for OUD; (2) need for patient-centered policies and inter-organization communication, and (3) importance of meeting people where they are, geographically and at their stage of change. These themes highlighted aspects of integrated care for HIV and OUD not captured in the original BHIMC. ConclusionsPatients, clinical staff, and organization leadership perceive that addressing social risks, communication across agencies, and meeting patients in their psychosocial and structural context are important for optimizing integration of HIV and OUD-related care. Our proposed, novel instrument is a step towards measuring and improving service delivery locally and nationally for this vulnerable population.

Partnership Processes to Develop SHE Tribe: A Healthy Lifestyle Intervention.

Chronic diseases, like diabetes and heart disease, disproportionately impact women of color as compared to White women. Community-engaged and participatory approaches are proposed as a means to address chronic disease health disparities in minority communities, as they allow for tailoring and customization of strategies that align with community needs, interests, and priorities. While community-based participatory research (CBPR) is a framework that offers a clear set of principles to guide intervention design and development, the complexity and diversity of community contexts make it challenging to anticipate all of the possible pathways to implementation. This article describes the application of CBPR principles in the design and development of SHE Tribe (She's Healthy and Empowered), a social network-based healthy lifestyle intervention intended to promote the adoption of sustainable health behaviors in underserved communities. Practical and specific strategies are described to aid practitioners, researchers, and community partners as they engage in community-academic partnerships. These strategies uncover some of the inner workings of this partnership to promote trust and collaboration and maximize partner strengths, with the aim to aid others with key elements and practical steps in the application of participatory methods.

A Health Needs Assessment of the Filipino American Community in the Greater Las Vegas Area.

Purpose: The number of Filipino Americans in Las Vegas, Nevada, is growing considerably, but no research to date has assessed the specific health needs of this burgeoning population. Thus, this study aims to assess health behaviors, perceived community health problems, and self-reported diseases/conditions among Filipino Americans in the Greater Las Vegas area and evaluate any difference by gender.Methods: A cross-sectional survey was conducted among 200 Filipino American adults residing in the Greater Las Vegas area using a prevalidated instrument.Results: The self-reported prevalence of hypertension, high cholesterol, and diabetes was 48%, 46%, and 25%, respectively. Adverse health behaviors, in terms of insufficient exercise and diets lacking in fruits and vegetables, were noted among our participants. Approximately 67% of participants reported exercising less than the recommended 150 min of physical activity per week and <3% of the study population ate the recommended five servings of fruits and vegetables a day. On the contrary, consumption of sweet snacks and salty condiments was high. More than two-thirds of respondents indicated that the Filipino American community should address the identified health conditions.Conclusions: The high self-reported prevalence of hypertension, high cholesterol, and diabetes demonstrates a pressing public health problem among Filipino Americans in Las Vegas. Given that our study population comprised predominantly college-educated, middle-income, and insured individuals, the findings may be underestimated and thus the actual disease prevalence may be even higher. Results of this survey will be used to develop future interventions for the Filipino American community in Las Vegas using the principles of community-based participatory research.

A Group Randomized Trial to Reduce Obesity among Appalachian Church Members: The Walk by Faith Study.

Background: Appalachia is a rural, socioeconomically disadvantaged region with high rates of cancer and obesity. Using community-based participatory research principles, the Appalachia Community Cancer Network tested an initiative to reduce weight among overweight and obese participants by partnering with churches, an important community-based institution in Appalachia.Methods: A group randomized trial was conducted with counties or groups of counties in five Appalachian states. These groups were randomly assigned to receive either monthly diet and exercise education sessions ("Walk by Faith"; WbF) or an educational program focused on cancer screening and education ("Ribbons of Faith"; RoF) to examine effects on weight change. Participants completed questionnaires and biometric measurements at baseline and 12 months. The primary outcome of the study was weight change from baseline to 12 months.Results: The relative difference in weight loss from baseline to 12 months for WbF compared with RoF was 1.4% but was not statistically significant (P = 0.13). However, results varied by sex and marital status. WbF men experienced a significant 2.8% decrease in body weight, married WbF women a 1.5% decrease, and unmarried WbF women a 1.5% increase compared with their respective RoF subgroups (interaction P = 0.016). Among WbF participants, greater participation in monthly educational sessions was associated with greater weight loss (P = 0.002).Conclusions: WbF facilitated weight loss mainly in male participants. Level of participation in WbF activities correlated with weight loss.Impact: Findings suggest that additional research is needed to better understand factors associated with participation in health promotion programs for underserved rural communities. Cancer Epidemiol Biomarkers Prev; 27(11); 1289-97. ©2018 AACR.

Community-Based Participatory Research for Health

The new edition of Community-Based Participatory Research for Health by Nina Wallerstein and colleagues is an extremely valuable resource for a wide variety of stakeholders interested in collaborative work to promote health equity. This updated collection succinctly delineates the theory, history, principles, and practices of community-based participatory research (CBPR) to help the reader understand CBPR as an approach, a philosophy, and an ethic. This updated edition will serve as a helpful resource for those interested in incorporating CBPR principles and approaches into their work. The chapters are authored by leaders and innovators in CBPR who provide insights, share experiences, and describe case studies that expand our ability to understand and envision the transformative power of CBPR in practice. The book is divided thematically into seven parts plus 13 appendices. Updates to this edition align with critical dialogues about positionality, privilege, and power in a way that encourages healthy self-reflection.

Better Health Durham: Community Engagement in a Cluster RCT of a Prevention Practitioner Intervention in Low-Income Neighbourhoods

Background: The Building on Existing Tools to Improve Chronic Disease Prevention and Screening (BETTER) intervention has improved uptake of chronic disease prevention and screening activities in primary care. The BETTER intervention consists of 1:1 visits between prevention practitioners (PPs) and patients (40-65 years). It is unknown if an adapted BETTER could be effective in the community with public health nurses as PPs. Aim: The presentation objective is to describe community engagement strategies in a cluster RCT in low income neighborhoods with low cancer screening rates and low uptake of primary care. Methods: Principles of community-based participatory research were used to design the community engagement strategy in Durham region, Ontario. Key elements included close collaboration with public health partners to identify stakeholders and creating a community advisory committee (CAC) and a primary care engagement group to provide advice. Results: We identified 15 community stakeholder groups (∼47 subgroups) including service organizations, faith groups, and charitable organizations representing diverse constituents. Community outreach activities included in-person meetings and information displays at local events. The CAC is comprised of members of the public and representatives from primary care, social services, and community organizations. The CAC and primary care engagement groups have provided advice on trial recruitment strategies and on the design of the PP visit. Conclusion: The partnership between public health, primary care, and the study team has been crucial to connect with community stakeholders. Community engagement is essential in raising awareness about the study and will contribute to successful recruitment. Trial Registration: NCT03052959

Assessing Acceptability, Feasibility, and Preliminary Effectiveness of a Community-Based Participatory Research Curriculum for Community Members: A Contribution to the Development of a Community-Academia Research Partnership.

Purpose: The community-based participatory research approach has been identified as a great asset in reducing health disparities through the integration of community members in all phases of the research process. It is essential to provide skills to community members to achieve successful research partnerships. The purpose of this study is to evaluate the feasibility, acceptability, and preliminary efficacy of the community-based participatory research training curriculum for community members.Methods: Using mixed-methods, noncomparative design, eight workshops were developed and tested. Workshops covered topics such as community-based participatory research principles, health disparities, ethics in community-based participatory research, and fundamentals of research methodology. A total of 25 community leaders were trained. Pre-/post-test knowledge (unpaired t-test), retention rate, workshop satisfaction, and cognitive debriefing sessions were used to assess knowledge gained and acceptability and feasibility of the curriculum.Results: A retention rate of 100% and an average satisfaction of 92.68% were obtained. Preliminary effectiveness results indicate that there was an overall significant change in participant's knowledge before and after the curriculum (p<0.001). In the cognitive debriefing, participants were satisfied with the organization and structure and found the curriculum feasible. Furthermore, participants identified the skills acquired to aid in being more effective in their communities and work with academic researchers. The following changes were recommended: workshops' order, time, practical activities, and level of language.Discussion: Findings from this study suggest that the curriculum was acceptable and feasible to community leaders and that it might provide skills to actively incorporate community members in research activities. A large randomized clinical trial (RCT) study to evaluate curriculum effectiveness is recommended.

Community-based participatory research (CBPR): Towards equitable involvement of community in psychology research.

Community-based participatory research (CBPR) answers the call for more patient-centered, community-driven research approaches to address growing health disparities. CBPR is a collaborative research approach that equitably involves community members, researchers, and other stakeholders in the research process and recognizes the unique strengths that each bring. The aim of CBPR is to combine knowledge and action to create positive and lasting social change. With its origins in psychology, sociology, and critical pedagogy, CBPR has become a common research approach in the fields of public health, medicine, and nursing. Although it is well aligned with psychology's ethical principles and research aims, it has not been widely implemented in psychology research. The present article introduces CBPR to a general psychology audience while considering the unique aims of and challenges in conducting psychology research. In this article, we define CBPR principles, differentiate it from a more traditional psychology research approach, retrace its historical roots, provide concrete steps for its implementation, discuss its potential benefits, and explore practical and ethical challenges for its integration into psychology research. Finally, we provide a case study of CBPR in psychology to illustrate its key constructs and implementation. In sum, CBPR is a relevant, important, and promising research framework that may guide the implementation of more effective, culturally appropriate, socially just, and sustainable community-based psychology research. (PsycINFO Database Record (c) 2018 APA, all rights reserved).

Pediatric Manganese Exposure and Neurocognition in Eastern Ohio

Manganese (Mn) is both an essential element and neurotoxicant. Two communities in eastern Ohio have the two of the highest ambient Mn concentrations in the nation. Our goal is to address the communities' primary research question: &amp;#8220;Does Mn affect cognitive development of children?&amp;#8221; Children ages 7-9 were enrolled in the Communities Actively Researching Exposure Study (CARES) from Marietta, Cambridge, and East Liverpool, Ohio. CARES has been conducted using community-based participatory research principles. We conducted neurocognitive assessment (child IQ). Blood was analyzed for Mn and lead (Pb); hair were analyzed for Mn, and serum was analyzed for cotinine, a measure of second hand tobacco smoke. We used penalized splines to assess potential non-linear associations between biological measures and child IQ scores, followed by multivariable regression models with categorical variables based on quartiles of the distribution for biological measures. Both low and high Mn concentrations in blood and hair were negatively associated with child IQ scores. There was a negative association between hair Mn and child IQ in East Liverpool children. Serum cotinine was also negatively associated with child cognitive function. Community engagement has enhanced the research process and the translation of study findings for these communities.

Engaging Small Residential Construction Contractors in Community-Based Participatory Research to Promote Safety.

Construction is a large employment sector with a high prevalence of small businesses. Despite the high injury rates reported for employees of small construction firms, these firms are under-represented in occupational safety research studies. Such studies are needed to understand barriers experienced by these firms and to examine ways to overcome them. However, challenges accessing and recruiting this hard-to-reach population are frequently reported. Traditional approaches of recruiting through unions or workers' compensation insurers may not be appropriate or effective for small construction businesses. Previous studies have demonstrated the value of academic collaborations with community-based organizations for recruiting participants from hard-to-reach populations for research studies. In accordance with the principles of Community-Based Participatory Research (CBPR), we formed a recruitment team comprised of staff from a local union, a community organization, and a community outreach team to recruit small construction contractors in Lawrence, MA. Media marketing strategies, participation in community events, exploring neighborhoods in search of ongoing residential projects, and partnership with vocational training institutions and building trade associations were some of the strategies implemented during this project. We recruited 118 contractors, supervisors, and foremen from more than 50 construction firms across the Greater Lawrence area to participate in an intervention project to reduce falls and silica exposure. The CBPR approach facilitated the development and implementation of recruitment strategies that resulted in the participation of a significant number of hard-to-reach small construction contractors.

Community-based participatory research to promote healthy lifestyles among Latino immigrant families with youth with disabilities

Background/Aims: Community-based participatory research (CBPR) is an optimal approach that brings together community stakeholders, researchers and practitioners in an effort to understand and address social issues and health disparities experienced by vulnerable populations. Latino immigrant families in the United States with youth and young families with disabilities have experienced a number of barriers in gaining positive health outcomes. These families face challenges in maintaining a healthy lifestyle, placing them at high risk for obesity, diabetes, and other chronic health conditions. The purpose of this study was to develop a healthy lifestyles intervention in collaboration with Latino immigrant families with youth and young adults with disabilities using a CBPR approach, and to examine the impact of the intervention from participants’ perspectives.Methods: Grounded in the principles of CBPR, we developed a partnership with community stakeholders to create a healthy lifestyles intervention aimed at meeting the needs of Latino families in the United States. During and following implementation of the intervention, we conducted focus groups with 12 intervention participants to examine the impact of the intervention.Results: Participants identified the intervention program as meeting a need in the community and reported specific positive aspects related to health behaviors, social learning, inclusion, community participation, and peer advocacy.Discussion: CBPR healthy lifestyle interventions are relevant to the needs of Latino immigrant families with youth and young adults with disabilities. Health professionals should involve community residents in the design of healthy lifestyles programming to ensure strategies for change are relevant and relatable.