Articles published on people-experience
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- Research Article
- 10.1186/s40352-025-00367-z
- Oct 30, 2025
- Health & Justice
- Meghan M O’Neil + 4 more
BackgroundJustice-impacted persons aged 40 and up with substance use disorders (SUD) demonstrate increased health risks and health disparities relative to general population peers. Persons with SUD are less likely to age out of criminal behavior, appearing on criminal dockets, in jails, prisons, and under community supervision throughout the life course, with greater community-level cost burdens as they age. Justice system involvement presents health risks that compound with SUD to undermine well-being, which is amplified as people age and experience age-related health decline. Propensity for premature mortality from overdose is startlingly high for this population, highlighting demand for targeted policies to better meet the needs of this vulnerable group. To better understand justice-impacted older adults in treatment for SUD and inform policy, we examined opioid use outcomes among 357 low-income justice-impacted adults in SUD treatment in the Midwest, USA, including a natural oversampling of Black and American Indian or Alaska Native (AIAN) persons. We explored patterns among persons in their 40s, 50s, and 60s, relative to those under 40, conceptualizing life-course risk factors and using logistic regression to assess overdose, opioid use, and opioid agonist medication use.ResultsSignificant differences in opioid use by age were observed, with older persons less likely to report opioid prescription misuse or illicit opioid use. Differences were not significant once controlling for user preferences, race/ethnicity, gender, family, childhood, and life course experiences. Overdose history was also significantly less likely for the 40 and older SUD patient, though this was no longer significant when controlling for demographic covariates. Opioid agonist medication use did not significantly differ by age.ConclusionsJustice-involved patients aged 40 and up in SUD treatment were less likely to have experienced overdose or report opioid use, relative to their younger peers, but this variation dissipated when considering demographic, family and/or life course factors. Targeted treatment services for gender and racial minorities may be beneficial for patients 40 and up. We identify preference for one substance, versus two, as protective against overdose and opioid use among older persons who use drugs.
- Research Article
- 10.1080/10410236.2025.2580322
- Oct 30, 2025
- Health Communication
- Kayla B Rhidenour + 3 more
ABSTRACT This study examines how individuals with long COVID navigate illness experiences when faced with normal test results. Through qualitative analysis of 1,043 posts from r/covidlonghaulers between July 2020 and January 2021, we identified four key themes: overlapping diagnostic possibilities increase confusion, discordance in treatment plans, sustained uncertainty, and challenges to credibility. Our findings reveal how polysemic meanings of normal become sites of tension between biomedical evidence and lived experiences, creating a communicative burden for patients who must advocate for legitimacy and care. The analysis demonstrates how overlapping symptomology with other conditions complicates diagnosis, while patients develop strategies to navigate dismissive healthcare encounters and establish credibility when symptoms persist despite normal results. Reddit served as a vital platform for patients to exchange communication strategies for healthcare encounters and find validation when test results invalidated their experiences. A strength of this study is its ability to capture the experience of people with long COVID at the community’s inception through a platform that connected them despite geographical barriers. Our findings provide valuable insights into how patients navigate contested illness experiences and offer concrete pathways for enhancing patient-provider communication around medically unexplained symptoms across various diagnoses.
- Research Article
- 10.1186/s12879-025-11962-8
- Oct 30, 2025
- BMC Infectious Diseases
- Sonali Dinushika Gunasekara + 8 more
BackgroundThe experiences of patients and healthcare providers are fundamental in understanding the patient journey, particularly in the context of neglected diseases affecting rural populations. These insights are crucially important for advancing people-centred, high-quality healthcare and achieving improved health outcomes. Cutaneous leishmaniasis (CL) causes chronic, disfiguring skin lesions leading to a significant burden on the affected communities and the health systems. Our study aims to examine the experiences of people with CL after entering the biomedical healthcare system. We also integrate these findings with our previous work to map the entire CL patient journey in a disease-endemic district in Sri Lanka.MethodsWe conducted a qualitative study in three rural communities with high disease prevalence in the Anuradhapura district, Sri Lanka. We collected data through (1) a participant experience reflection journal (PERJ), (2) post-PERJ interviews and (3) an interview study with healthcare professionals. We analysed data through thematic analysis.ResultsThirty PERJs were completed by individuals with CL, with 25 participating in post-PERJ interviews and 16 healthcare professionals participated in the key informant interviews. Upon entering a biomedical healthcare facility, a person with CL navigated through the stages of clinical suspicion and laboratory diagnosis, receiving treatment and achieving a cure (as clinically confirmed by the treating dermatologist). Although many physicians accurately suspected cases upon initial presentation, some failed to clinically diagnose CL promptly. Some patients experienced prolonged waiting times for their initial consultations with the dermatologist and to receive diagnostic test results. Accessibility issues, travel and meal costs, and competing responsibilities like household work, education, and employment further added to the burden of attending frequent clinic visits for CL. Despite the long and painful nature of the treatment, compliance among people with CL remained satisfactory, with rare reports of treatment failure. For some people, the CL patient journey extends beyond the clinically defined cure, as they continue to live with constant fears, perceived physical impacts associated with the disease, and effects of treatment.ConclusionsWe found that, despite certain positive aspects, the CL patient journey is complex, with substantial and pervasive delays and barriers along with psychosocial impacts that persist beyond clinical cure. Our study findings can inform evidence-based, context-specific interventions to reduce the public health burden of CL in resource-limited settings.Supplementary InformationThe online version contains supplementary material available at 10.1186/s12879-025-11962-8.
- Research Article
- 10.1371/journal.pone.0335347
- Oct 29, 2025
- PLOS One
- Nada Aljohani + 6 more
BackgroundYoung people with Type 1 diabetes in Saudi Arabia transition from paediatric to adult care at a culturally defined age of 14, which is younger than the average transition age in Western societies. The aim of this study was to elicit the experiences of young people with Type 1 diabetes, their parents, and healthcare providers in Saudi Arabia as they transitioned from paediatric to adult care.MethodsIn healthcare, Design Thinking is a human-centred approach that draws on participants’ experiences and perspectives to design and develop interventions, models, or services that meet the needs of stakeholders. This study reports the first inspiration phase of the Design Thinking process. Four parallel exploration workshops were held with pre- and post-transition young people with Type 1 diabetes (n = 12), their parents (n = 8), and healthcare providers (n = 7).FindingsSix key themes were identified from the workshops’ data analysis. For young people, the key themes were facing the unknown and preparedness; developing autonomy and recognition as an independent person; and interacting with the adult healthcare team. For parents, the themes were navigating the shift in parental role and involvement in care, interacting with healthcare professionals, and changing support needs. For healthcare providers, the key theme was balancing independence and care approaches.ConclusionThe Inspiration phase of the Design Thinking approach provided valuable insights from the healthcare transition experiences of young people with Type 1 diabetes, their parents, and healthcare providers in Saudi Arabia. The generated insights facilitated the identification of areas for interventions in the process’s following phases.
- Research Article
- 10.1002/pan3.70189
- Oct 29, 2025
- People and Nature
- Siddharth Unnithan Kumar + 1 more
Abstract The human sensory systems are a primary means through which people experience and connect with nature. Understanding and improving people's personalised ecologies—their embodied, sensory interactions with other organisms—is key to addressing the causes and consequences of the extinction of experience and ecological grief prevalent in industrialised society. Despite this importance, to date there has been little quantitative research into how varying sensory capabilities may result in people having very different personalised ecologies. In this paper, we investigate how human–nature interactions can vary for people with different hearing acuities. We combine data on age‐related hearing loss with frequency‐amplitude profiles of birdsong for ten bird species in the United Kingdom, to estimate how the ability to hear bird vocalisations at a given distance may change with age. Our results suggest that the ability to perceive birdsong, and the distances at which songs can be heard, are likely to decrease dramatically for older listeners, with perceptual differences being more pronounced for birds which sing at higher frequencies. Moreover, with age‐related hearing loss, birdsong may lose its perceived richness, become apparently more similar between species, and be less distinguishable from other sounds, particularly for higher frequency vocalisations. These findings have significant implications for personalised ecologies and citizen science. We advocate for greater attention to the primacy of sensory perception in human–nature interactions, and an awareness of how variation in sensory capabilities may result in people experiencing nature very differently. Read the free Plain Language Summary for this article on the Journal blog.
- Research Article
- 10.1017/ipm.2025.10123
- Oct 29, 2025
- Irish journal of psychological medicine
- Mike Watts
The value of people's unique lived experience of mental illness (including psychosis), professional treatment and recovery as a valid form of knowledge remains relatively unexplored and under-utilised by mental health professionals, policy makers and by those seeking help. Mutual peer support remains a largely untapped resource, often ignored and distanced from mainstream services. In this reflective perspective article, I share my own experiences as a service user, spouse, close relative and brother-in-law and also as someone who worked for many years in mutual peer support and in the area of recovery. I reflect on the findings of my doctoral narrative research which focused on the role played by Grow Mental Health, Ireland's largest network of mutual peer support groups, in recovery from a wide range of diagnoses. The main finding from this research suggested that recovery can be experienced as a re-enchantment with life and that mental illness can act as a gateway to mental health rather than be experienced as a form of (often life-long) disability. In the discussion I try and envisage what a recovery oriented mental health system might look like, and what changes would need to be introduced. Despite such a long personal history of dealing with mental illness and witnessing many different levels of recovery, I still have much to learn about mental illness and recovery. I also welcome many recent changes made within the system and indeed this special edition of the journal.
- Research Article
- 10.1111/hex.70474
- Oct 29, 2025
- Health Expectations : An International Journal of Public Participation in Health Care and Health Policy
- Tara Purvis + 23 more
ABSTRACTBackgroundOften people experience ongoing health challenges after stroke. The Australian Stroke Clinical Registry collects patient‐reported outcomes after stroke. Many patients report challenges that are potentially addressable through additional support.AimsTo co‐design a registry‐based, hospital‐initiated, follow‐up service for people who report major health‐related challenges between 90 and 180 days after their stroke.MethodsIterative, consensus‐based methods were used to co‐design a follow‐up service intervention including eligibility criteria, clinical protocol (consultation/communication forms and pathways) and implementation requirements (e.g., training manual) (May 2022–March 2023). Stakeholders, including Australian‐based clinicians providing stroke care, researchers and people with lived experience of stroke, were involved in each stage. Data collection: Stage 1 (development), (i) scoping survey; (ii) two consensus meetings; (iii) interviews with key informants (n = 3); (iv) online modified Delphi survey; Stage 2 (testing and finalisation), (v) piloting of the follow‐up service intervention at one hospital, with service coordinator/study team interview and participant satisfaction surveys and; (vi) final review (modified Delphi survey). Consensus was defined in the modified Delphi surveys as ≥ 80% ‘agreement’ or verbal consensus via open voting during meetings. Additional recommendations from each step were iteratively incorporated to refine the intervention.ResultsScoping survey results (n = 41/108 respondents, 38% response rate) highlighted the need for broad inclusion criteria and the involvement of carers/support person and general practitioners. During the consensus meetings (16/18, 89% stakeholders attended at least one), verbal consensus was achieved for the eligibility criteria, and additional recommendations were made for the referral report and components within the clinical protocol and training manual. After the final Stage 1 modified Delphi survey (n = 10, two cohorts), 70%–100% consensus was achieved for the referral report, clinical protocol components and training manual, which were then piloted with six eligible participants. Feedback from the pilot testing (n = 3 coordinator/staff interviews; n = 5 satisfaction surveys) led to further clinical protocol modifications. Agreement was reached for all additional recommendations during the final modified Delphi survey round (16/29 respondents, 55%).ConclusionWe describe an iterative, consensus‐based co‐design process which resulted in a novel, registry‐based follow‐up service intervention for people living with stroke reporting major health challenges. A feasibility randomised controlled trial is the next stage.Patient or Public ContributionPeople with lived experience of stroke, including their family/caregivers, actively participated throughout the co‐design process to develop and test the follow‐up service intervention. There was lived experience representation with scoping survey responses, as well as within the working group and independent review group who were involved with the consensus meetings and modified Delphi process. Survey feedback from people with stroke who piloted the developed service intervention was also integral to informing the final service intervention.
- Research Article
- 10.1371/journal.pgph.0004879.r003
- Oct 29, 2025
- PLOS Global Public Health
- Constance Bwire + 12 more
Climate change is driving more frequent and intense heatwaves, posing growing risks to urban populations, particularly children and young people (CYP). This study examined how heatwaves affect the health, well-being, and daily lives of CYP across six rapidly urbanising cities: Accra, Kumasi, Ouagadougou, Port Harcourt, Manila, and Dar es Salaam. We conducted online surveys during both heatwave and non-heatwave periods, collecting 2,269 valid responses. Heatwaves were defined as periods when apparent temperatures exceeded the 90th percentile of historical monthly averages for at least three consecutive days, and, where available, confirmed by national meteorological sources. Non-heatwave periods were defined as days within the same month and city when apparent temperatures were less than or equal to the 10-year average daily mean. Participants, CYP aged 13–29 and parents of children under 18, were recruited via targeted digital advertisements on Meta and Google. Quantitative data were analysed using descriptive statistics, chi-square tests, and logistic regression to assess associations between heatwave exposure and self-reported health symptoms, well-being, and daily disruptions. Thematic analysis of open-ended responses identified community priorities for climate resilience. Heatwaves were associated with higher reports of headaches, low mood, anxiety or stress, not enough food, and increased reliance on family support. Adverse effects were more pronounced among younger and lower-income participants. Participants highlighted five priorities for climate-resilient cities: more green spaces, improved water and sanitation, cleaner environments, stronger health and education services, and greater youth participation in decision-making. The results highlight the growing burden of heat-related health symptoms and daily activity disruptions among CYP and youth-informed strategies to reduce the unequal impacts of extreme heat in urban areas.
- Research Article
- 10.1371/journal.pgph.0004879
- Oct 29, 2025
- PLOS global public health
- Constance Bwire + 10 more
Climate change is driving more frequent and intense heatwaves, posing growing risks to urban populations, particularly children and young people (CYP). This study examined how heatwaves affect the health, well-being, and daily lives of CYP across six rapidly urbanising cities: Accra, Kumasi, Ouagadougou, Port Harcourt, Manila, and Dar es Salaam. We conducted online surveys during both heatwave and non-heatwave periods, collecting 2,269 valid responses. Heatwaves were defined as periods when apparent temperatures exceeded the 90th percentile of historical monthly averages for at least three consecutive days, and, where available, confirmed by national meteorological sources. Non-heatwave periods were defined as days within the same month and city when apparent temperatures were less than or equal to the 10-year average daily mean. Participants, CYP aged 13-29 and parents of children under 18, were recruited via targeted digital advertisements on Meta and Google. Quantitative data were analysed using descriptive statistics, chi-square tests, and logistic regression to assess associations between heatwave exposure and self-reported health symptoms, well-being, and daily disruptions. Thematic analysis of open-ended responses identified community priorities for climate resilience. Heatwaves were associated with higher reports of headaches, low mood, anxiety or stress, not enough food, and increased reliance on family support. Adverse effects were more pronounced among younger and lower-income participants. Participants highlighted five priorities for climate-resilient cities: more green spaces, improved water and sanitation, cleaner environments, stronger health and education services, and greater youth participation in decision-making. The results highlight the growing burden of heat-related health symptoms and daily activity disruptions among CYP and youth-informed strategies to reduce the unequal impacts of extreme heat in urban areas.
- Research Article
- 10.1080/22423982.2025.2572873
- Oct 28, 2025
- International Journal of Circumpolar Health
- Léa Plourde-Léveillé + 1 more
In Nunavut, Inuit territory in Canada, young people have suicide rates nine times higher than the overall Canadian rates. However, mental health services struggle to reach young people. Regional suicide prevention organizations call for improved services and a better continuum of care. Yet little research has explored young people's experiences with the services currently available. As part of a larger study on resilience in Inuit youth, we asked them to explain their lack of use of mental health and suicide prevention services. The study was conducted in Arviat and Pangnirtung and followed the Inuit methodology Aajiiqatigiingniq Research Methodology (ARM), a cultural process for consensus building and solution-seeking compatible with a qualitative research approach. Advisory boards were created in each community. Interviews were conducted with thirty-one Inuit youths age 15 to 24. Data were analyzed by a thematic analysis. Young Inuit expressed a general discomfort with available services, including uneasiness with the health center and the way services are provided, they lacked information about services, lamented inadequate outreach methods and expressed a feeling of mistrust. Our findings support the value of several ongoing initiatives based upon cultural traditions, and may inform the continuum of care for suicide prevention .
- Research Article
- 10.1111/psrh.70040
- Oct 28, 2025
- Perspectives on sexual and reproductive health
- Georgia R Breakey + 1 more
Intrauterine devices (IUDs) are a type of long-acting reversible contraception (LARC) that sit inside the uterus. However, due to the internal nature of the device, pain and lack of control are major concerns for people using IUDs. We conducted conventional qualitative content analysis of posts from the global subreddit r/birthcontrol that mentioned IUDs in the month of July 2022 to answer the question "what are people's experiences with IUDs as discussed on Reddit?" Reddit, being an online social media platform, makes the geographic background of most of the participants unknown; however, the posts on this subreddit are written in English. Of the 456 Reddit posts, four overarching categories were identified: "Interactions with other users," "Concerns," "Reason for getting IUD," and "Dissatisfied with treatment from medical staff." Despite IUD insertion being reported as painful and participants experiencing painful side effects, these concerns were not always taken seriously by medical staff. This was often in the form of feeling dismissed and not being given adequate pain management options before procedures such as IUD insertions and removals. Findings provide insight into IUD users' perspectives and opinions on the care they receive from medical professionals. Highlighted are areas that need improvement, such as providing more pain management options and more transparency regarding the potential risks and side effects of having an IUD.
- Research Article
- 10.3390/ijerph22111640
- Oct 28, 2025
- International Journal of Environmental Research and Public Health
- Courtney Ryder + 17 more
Out-of-pocket health expenditure (OOPHE) significantly impacts people with chronic and complex diseases (CCDs) and injuries. Aboriginal communities experience a higher burden of CCDs and injury, along with greater OOPHE inequities. This project aims to develop and implement a social prescribing digital platform (Web App) to reduce OOPHE. It is grounded in citizen science approaches that value the lived experience and knowledge of Aboriginal people in shaping solutions. The project uses a citizen science methodology adapted for these communities, using knowledge interface methodology to weave together Indigenous and Western knowledges. Research methods (Indigenous, quantitative, qualitative) explore the relational nature of OOPHE risks and protective factors through co-design and workshops with Aboriginal participants to develop the Web App. A community-centric developmental evaluation guides the trial and refinement of the platform, allowing for ongoing learning and adaptation. Process measures inform a national scale-up and evaluation framework. Addressing OOPHE is essential to improving health and wellbeing for Aboriginal and Torres Strait Islander individuals and families living with or at risk of CCDs. This initiative aims to reduce the impact of OOPHE through digital social prescribing, there by connecting people with essential community services to access healthcare, offering a scalable approach to addressing health inequities nationwide.
- Research Article
- 10.1002/cli2.70022
- Oct 28, 2025
- Climate Resilience and Sustainability
- Mohammad Shaheen Alam + 5 more
ABSTRACT Climate change is a pressing issue, particularly impacting Bangladesh. It poses a serious threat to human health. Different catastrophic environmental disasters disproportionately affect the poor and vulnerable, especially in Bangladesh's coastal regions. The current study examines the mental and physical health risks faced by climate change in coastal areas. We employed a mixed‐methods approach, combining qualitative and quantitative research, and the study was conducted among 280 individuals using a stratified random sampling method from Chittagong, Noakhali, Feni, and Lakshmipur districts. We quantitative data was collected via google form questionnaire consisting of sections on sociodemographic factors, natural disasters, man‐made disasters, mental and physical health, injuries, community disruption, and anxiety. Cronbach's alpha, KMO, Bartlett's test, regression variable plots, and Pearson correlation analysis by descriptive analysis were used in this study. We found 52.5% of female injuries and mortality 40%, anxiety and depression 35%, crises caused by cyclones 26%, and flooding 48%. Moreover, we found gender, occupation, health crisis by natural and man‐made disaster, injuries, death, and anxiety associated with health. The study revealed that most people had little knowledge about climate change and its impacts. Over the past decade, millions have been affected by disasters, yet a significant lack of awareness persists regarding the physical and mental effects of climate change. To tackle this issue, it is essential for the government and relevant stakeholders to initiate additional environmental projects, construct dams in coastal regions, conduct river excavations, and enforce regulations related to climate change.
- Research Article
- 10.1177/14661381251391995
- Oct 27, 2025
- Ethnography
- Camila Chagas + 4 more
Based on data generated from an ethnographic exploration conducted in Portugal, this article examines religious expression among homeless people who use drugs in the city of Porto. The article addresses elements of religiosity that often go unnoticed amidst the social and psychological vulnerabilities present in areas where substance use takes place. The homeless people inhabit spaces of exclusion, places that belong to everyone and no one. These liminal settings can give rise to unique forms of religious expressions and interpretations. In these marginal contexts, religiosity often emerges as one of the few constants in the lives of these individuals, offering a sense of subjective protection that can foster stability and a degree of personal control. However, this feeling of subjective protection may also function as a risk factor by producing a false sense of security in situations with a high risk of communicable diseases and overdose.
- Research Article
- 10.1111/nyas.70114
- Oct 26, 2025
- Annals of the New York Academy of Sciences
- Daniella Watson + 7 more
There are a myriad of ways that young people experience and respond to awareness of the climate crisis. The way these experiences and their potential impacts on mental health are conceptualized is not yet clear or consistent for this emerging field of research. Consolidating emerging concepts, definitions, and theories can help to focus future research, policy, and interventions. We conducted a narrative review of academic literature covering climate change and mental health research focusing on young people. We searched Web of Science for English-language reviews published until June 27, 2024, and primary data published between January 2023 and June 2024. We extracted relevant concepts and created categories of concepts. Artificial intelligence (AI) technologies (ASReview and ChatGPT) assisted papers screening and categorization, with human validation from global experts. We identified 93 relevant articles describing 173 terms for young people's experiences of climate change awareness; 52 coping strategies; and 62 frameworks, models, and theories with varying and overlapping definitions. We present and categorize the most frequent. This narrative review provides a foundational guide to the complex field of climate psychology, focusing on young people. We outline a seven-phase roadmap to further explore and consolidate understandings of emerging concepts and to map their interrelationships.
- Research Article
- 10.31499/2617-2100.15.2025.342134
- Oct 26, 2025
- Psychological Journal
- Victor Pervyi + 1 more
This article is devoted to the issue of psychological diagnostics and psychocorrection of professional burnout of teachers. Psychological diagnostics and psychological correction are integral components of the work of a psychologist, in particular with the problems of professional burnout and compassion fatigue. Many specialists work in the fields of humanitarian services, which requires them to be compassionate when working with needy segments of the population, which can affect their well-being. Professional burnout is a psychological and social syndrome that occurs as a result of prolonged stress in the workplace and consists of three key signs - emotional exhaustion (in fact, compassion fatigue), cynicism in behavior (devaluation of other people's experiences), and decreased professional effectiveness, which is manifested in an unwillingness to work. Burnout occurs due to stressors in the workplace and a sense of overload, while compassion fatigue occurs as a result of experiencing trauma and the suffering of others. One of the most common methods used to measure burnout is the Maslakh Burnout Inventory (MBI). The results of psychodiagnostics are the basis for developing an individual or group psychocorrectional program. Repeated diagnostics after the completion of the corrective work allows you to assess its effectiveness and make the necessary changes. Such a systematic approach helps not only to temporarily relieve the symptoms of burnout, but also to form stable psychological defense mechanisms, which is an important condition for the long-term and successful professional activity of teachers.
- Research Article
- 10.1177/00957984251389695
- Oct 25, 2025
- Journal of Black Psychology
- Destin L Mizelle + 1 more
Naming practices within the Black American community are vibrant, deeply rooted in cultural traditions, and reflect shared values. Like other ethnic groups, these names tell stories, honor heritage, and connect individuals to their community. However, due to systemic anti-Blackness, Black Americans often have a complex relationship with their names. While prior research has focused on negative associations using quantitative methods, this qualitative study amplifies the voices of Black people with Black names. Using reflexive thematic analysis, this study examines the attitudes and lived experiences of Black people with Black names regarding their names. Five key themes emerged: From Name to Black Name, Say My Name, Balancing Creativity and Caution When Naming, Black Names as Identity Anchors, and You’re Not Sure, But You Wonder. Together, these themes highlight how personal experiences, family influences, and community connections shape one’s evolving relationship with their name. Findings suggest names may play a significant role in racial-identity development, capturing both pride and complexities associated with Black names. This study offers practical implications for understanding the social, cultural, and psychological significance of names within Black-American communities.
- Research Article
- 10.1007/s10597-025-01529-x
- Oct 25, 2025
- Community mental health journal
- Hazel Davison + 2 more
Research indicates high prevalence rates of adverse experiences in people experiencing first-episode psychosis. Despite recommendations that mental health staff should routinely ask about adverse experiences, documentation indicates these are not being recorded in service-users' clinical records across different mental health settings. This study audited 48 service-user records in a UK early intervention in psychosis (EIP) community mental health service to examine how often, where, and by whom adverse experiences were recorded. Searching for 22 adverse experience terms, 64.6% of clinical records documented at least one adverse experience, with 80.6% reporting more than one. The profession that most often recorded adverse experiences in service-users' clinical records was psychiatrists. While EIP services may document adverse experiences more frequently than other community mental health settings, recorded rates remain lower than expected based on previous research prevalence rates. Further studies should consider adverse experiences recording across UK EIP services to ensure service-users with adverse experiences receive appropriate support.
- Research Article
- 10.1080/14733285.2025.2576906
- Oct 24, 2025
- Children's Geographies
- A Leyman
ABSTRACT This paper presents empirical findings from an ethnographic study exploring autistic young people's experiences of public space and play. Drawing on multimodal data – including participant-generated media and non-participant observation, the study reveals how disabling atmospheres, shaped by social misunderstanding and sensory challenges, contribute to environmentally induced social anxiety and spatial exclusion. In response, participants engaged in immersive character role-play, particularly through cosplay, to creatively reconfigure their relationships with space. These practices enabled the construction of affective micro-environments that resisted exclusion, facilitated self-expression, and fostered familiarity and community. Cosplay functioned as both a shield and a tool for spatial negotiation, allowing participants to transform oppressive atmospheres and inhabit public spaces on their own terms. The findings underscore the importance of recognising autistic agency in shaping lived geographies and call for greater attention to the infrastructural and atmospheric pressures that impact neurodivergent individuals. In alignment with the social model of autism, the paper advocates for inclusive spatial design, practitioner training, and therapeutic approaches that address sensory-related social anxiety and support neurodiverse modes of engagement.
- Research Article
- 10.1186/s13643-025-02917-w
- Oct 24, 2025
- Systematic Reviews
- Jad Sinno + 5 more
BackgroundQueer populations (sexual and gender diverse people, including two-spirit, lesbian, gay, bisexual, trans, and queer) in Canada face significant health disparities, largely driven by stigma related to sexual and gender identities. These inequities are associated with adverse health outcomes. Although a growing body of literature examines stigma reduction, interventions often focus on specific types of queer stigma rather than considering the broader, intersectional experiences of queer people. This scoping review aims to critically explore the current state of queer stigma across the life course in Canada, with an emphasis on understanding their impact, successes, and gaps.MethodsThis review will include studies that address interventions aimed at reducing queer-related stigma in Canada. Eligible studies must focus on queer populations and measure outcomes related to stigma reduction. Studies of any design (qualitative, quantitative, mixed methods), published in English or French, and from any year will be considered. A systematic search will be conducted across multiple databases, including Medline-R (Ovid), Embase (Ovid), APA PsycInfo (Ovid), CINAHL (EBSCO), Social Services s (ProQuest), Social Science s (ProQuest), and Social Science Citation Index (Web of Science), along with grey literature sources. Two reviewers will independently assess potential articles against the inclusion criteria through two stages: titles and abstracts as well as full-text screening. Data extraction will focus on study characteristics, intervention details, and outcomes related to stigma reduction. Findings will be reported in tables and narrative summaries, guided by the socioecological model and intersectional queer theories. Data will be analyzed to identify trends and gaps in current interventions aimed at addressing queer stigma.DiscussionUsing an intersectional queer approach and the socioecological model, this review will identify gaps and strengths in queer stigma programming and interventions across the life course. The broad inclusion criteria and a rigorous approach will account for academic and grey literature, highlighting ongoing treatments, measurement tools, and resources. This extensive data collection will inform future research on queer peoples’ resource and programming needs in Canada. Findings will contribute to workshops development, training modules, and community reports for healthcare providers and community organizations serving queer communities.Systematic review registrationhttps://doi.org/10.6084/m9.figshare.28523621.v1.